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10:30 pm


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Eileen2345 Find out more about Eileen2345
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  • 10:30 pm

    Well here it is, it's May 5, 2008 a little after 10:30pm.

    This is my 3rd year anniversary for my myectomy.

    I remember waking up after surgery and looking at the clock and it being 10:30pm. All I have to say is thank God for fentanyl.

    My life is so different now. It's a total 180 degrees.

    I am well, I am no longer disabled. I work full-time as an Operations Assistant for a company in Scottsdale. I support myself and my children. It's truely amazing what Dr. Lever and Dr. Smedira did for me. Thay saved my life.

    The kids and I went out to dinner yesterday (Sunday) to celebrate and I took some pictures. I'm going to send the pictures and a thank you card to the Dr. Lever and Dr. Smedira.

    Not a day goes by that I don't think of those two wonderful doctors.

    Gosh, to look at me, you'd never even know I have a heart condition or I had heart surgery.
    I'm so lucky, I was given a second chance at life and I will never take that for granted.

    This is a pic of my son and me..

    A picture of my kids..

    I'll post the pictures of us together when I get them developed tomorrow.

    I coined a phrase: "I'm alive on 5-5-05!!"

    Thank you Dr. Lever and Dr. Smedira. Thank you forever.

    Last edited by Eileen2345; 05-05-2008, 11:02 PM.
    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.

  • #2
    Re: 10:30 pm

    Congrats! I'm so glad everyone celebrates their 2nd chance. It makes up for those that didn't get one.
    Diagnosed @ 48
    Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
    Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
    AICD - Valentines Day '08, Spark Plug replaced 11/14
    After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
    Quietly going insane . . .


    • #3
      Re: 10:30 pm

      Eve, I'm so happy you're doing so well. I remember how sick you were and how much that trip to Cleveland literally changed your life. You have beautiful kids and I'm really happy you get to enjoy them now instead of just being their mom like before. Congratulations!

      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4
        Re: 10:30 pm

        Congratulations and thank you for sharing your good news with us.

        Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
        ICD&Pacemaker 1996
        Heart transplant March 19, 2004 @ Mayo Rochester
        Mom of Kaye.


        • #5
          Re: 10:30 pm

          Good on ya Eve............

          Diagnosed in June 2007, Pacemaker Oct 2007, Myectomy in Feb 2009 at Cleveland Clinic, Two daughters, both checked with Ultrasounds in 2008, all OK so far. Two grandchildren both check with Ultrasounds and all is OK to date. OH YES....Harry, the Doggie, says Hi also. sigpic


          • #6
            Re: 10:30 pm


            I, too, remember how ill you were and all the struggles you were facing at that time in your life.

            I'm so glad that you feel so much better, and that your life is happier now.

            I think that I will be just like you. It will be 6 weeks on Thursday since my myectomy in Cleveland. I can already tell a major difference from before the surgery.

            Those doctors are awesome!



            • #7
              Re: 10:30 pm


              Myectomy on Feb. 5, 2007.


              • #8
                Re: 10:30 pm

                SO happy for you Eve. There were more then a few of us worried about you back then!

                Dx @ 47 with HOCM & HF:11/00
                Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                Lead failure,replaced 12/06.
                SF lead recall:07,extracted leads and new device 2012
                [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                Genetic mutation 4/09, mother(d), brother, son, gene+
                Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


                • #9
                  Re: 10:30 pm

                  Congratulations Eve. I am also thrilled by your new life. It is so nice to see the happy pictures of you and your kids. I know that you and they have many great years to look forward to.
                  Daughter of Father with HCM
                  Diagnosed with HCM 1999.
                  Full term pregnancy - Son born 11/01
                  ICD implanted 2/03; generator replaced 2/2005 and 2/2012
                  Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


                  • #10
                    Re: 10:30 pm

                    Wonderful news!! Your children are so cute. You all look so happy and for a very good reason.
                    Thank you for sharing your good news with us.


                    • #11
                      Re: 10:30 pm


                      Happy 3rd anniversary, with many more to come! Your kids are beautiful. The best thing is hearing about how well you feel and how happy you are with your life.

                      Know what you mean about not taking life for granted. It's been slightly more than a year for me and I can't believe how different I feel.

                      Thanks for staying connected to the msg board and being a source of hope and encouragement to this community.

                      Rich G
                      Myectomy and mitral valve repair, April 2007, St. Luke's Hospital (NYC)


                      • #12
                        Re: 10:30 pm


                        Diagnosed (w/obstruction) 2003 at 39
                        Alcohol Septal Ablation Feb. 2006
                        Myectomy April 2007 Cleveland
                        Pacemaker dependent (no ICD)
                        Thankful and doing fine


                        • #13
                          Re: 10:30 pm


                          Congrats on the anni. and your kids are beautiful. I did research before my myectomy and went through the archives and found your story. I am so happy you are in such a good place now.
                          Choose to laugh instead of cry...it's prettier!
                          You always have the option to change.

                          Diagnosed 1994 with no family history
                          AICD 10/06
                          Mayo Clinic Myectomy 11/07 Joe Dearani