If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Leaving for Cleveland tomorrow

Collapse

About the Author

Collapse

clbartsch Find out more about clbartsch
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Leaving for Cleveland tomorrow

    Hi All,

    I don't write much but I sure am glued to this site and all of your input. I am going to Cleveland tomorrow (Wed.). I have pre-op tests and whatever else they have in store for me on Thurs. & Fri. I am taking the weekend to enjoy life and rest on Kelly's Island (on Lake Erie) and surgery on Monday. By the way I may live in AZ. but my hometown is Cleveland, in fact I actually worked at CCF in 1976. So I will have support from family and friends for myself and my husband Brent.

    This is not an easy thing to arrange with 2 kids in school and another kid that has special needs to deal with, but I think I got it all covered. I am more nervous about my kids than I am about the surgery. Thanks to all of you and all your experiences you have brought great peace to me.

    I'll check in with you when I can.

    Catherine

  • #2
    I'll be thinking about you and praying for you while you are gearing up for and recovering from your myectomy. I sure all will turn out well.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Catherine, Best wishes to you and the family. I'm so glad you have family and friends in the area to help out. Linda

      Comment


      • #4
        Good Luck! I hope all goes well. We are here if you need anything!

        Best wishes,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment


        • #5
          Catherine,

          Sending my best wishes your way.

          You are in my daily prayers.

          Please remember, you are in the best hands in the world. You are going to do great.

          Please call me if you have any questions.

          Hugs,
          Eve
          49 yrs. old
          Diagnosed at 31.
          Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
          First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
          Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
          Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
          My brother passed away suddenly at 34 yrs old from HCM.
          2 teenage children, ages 17 and 15.

          Comment


          • #6
            Catherine,

            Wishing you the best next week.

            Stuart & Barbara
            Cleveland Myectomy Club
            August 31, 2004

            Comment


            • #7
              Hello Catherine,
              You will continue to be in my thoughts and prayers while you are in Cleveland! Please know that you are in the best of care with all the doctors and nurses and staff of Cleveland Clinic. We look forward to your updates as you heal and then get ready for your return to the "valley of the sun." I hope that all your worries are lifted and you are at peace with the procedures ahead. Just know that the best outcome will be specially supervised by angels above!

              I checked in on my mom yesterday. She has a good start on your new afghan. She really enjoys making a special person like you an extra special gift. I won't ruin the surprise, but I know you will love it! As soon as you are up to some visitors on your return, I would love to get together for lunch.

              Blessings to you and to your family that waits for you anxiously at home.
              Love and Light,
              Sharon

              Comment


              • #8
                Catherine.

                All the best. Keep us posted on how you are recovering.

                Peace,

                Leon
                God Squad co-moderator
                Nothing is as gentle as strength and nothing is as strong as gentleness

                Comment


                • #9
                  Katherine

                  I know it is very difficult being away from your children, but please don't worry so much about them. I'm sure they are in good hands. They need you to be healthy in order for you to guide them over the bumpy areas in life they will surely come across. So, you to Cleveland and know you will be going home a healthier person and able to do many things you struggled with for years.


                  You will be in my prayers.
                  Esther

                  Comment


                  • #10
                    Katherine-

                    Best of luck. You are in our thoughts and prayers.

                    Ange

                    Comment


                    • #11
                      Catherine,

                      Best wishes to you and your family. I'm sure you will do fine through surgery. Keep us updated on your progress If you have any questions or need to talk afterwards, we are all here for you.

                      You and your family are in my prayers!

                      John
                      41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005

                      Comment


                      • #12
                        Hey everyone,

                        Thanks for all of your support, prayers, and well wishes. Just read Mark's progress - very encouraging!
                        I am scheduled @ 10 am tomorrow - Monday. Had a chance to meet with Dr. Smedira on Friday - GREAT guy! Will keep you updated after surgery.

                        PS - Has anyone ever used "TheStatus.com?" - pretty cool! See mine by typing in "bartsch" in patient's name and "update1" in password. My husband is being real diligent in keeping it current. www.thestatus.com

                        Catherine Bartsch

                        Comment


                        • #13
                          I just went to the site you recommended. I think it's great! It gives the patient the incentive to walk and communicate with others.

                          I wish St. Mary's hospital would have this. It would pass the time.

                          Take care and please keep us updated.
                          Esther

                          Comment


                          • #14
                            I agree with Ester - What a great site!! We will all be praying for Cathy today.

                            John
                            41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005

                            Comment


                            • #15
                              I went on the thestatus.com site, too! Very informative and helpful for all the people hoping and praying for our friend, Catherine!

                              Sharon

                              Comment

                              Working...
                              X