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Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you
If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
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Connie, Laura and Hena
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About the Author
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single mother of 3 wonderful young adults;a special ed teacher, an RN and a senior accountant.
Find out more about Pam Alexson
The same from me! Will be checking in often for post surgery updates.
Dolly~
mom to Andrew(HCM) 21 years old
Diagnosed \'95 age 5
Myectomy \'96 age 6
ICD implant \'99 age 9
First ICD shock (X2) \'04
ICD replacement surgery \'05 age 15
*And aunt to 7 year old Kenny who had HCM and suffered sudden death in gym class. (2/20/87 - 4/6/94)
Best wishes for a successful operation and a speedy recovery for all three of you. We are all rooting for you!
Cynthia
Daughter of Father with HCM
Diagnosed with HCM 1999.
Full term pregnancy - Son born 11/01
ICD implanted 2/03; generator replaced 2/2005 and 2/2012
Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.
Adding my prayers and well wishes to all three of you.
You're like the 3 Musketeers!
I wish you all speedy and smooth recoveries.
For sure, I will be checking the board for updates.
Lots of hugs,
- Eve
49 yrs. old
Diagnosed at 31.
Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
My brother passed away suddenly at 34 yrs old from HCM.
2 teenage children, ages 17 and 15.
You know this is an HCMA first... The 3 centers we often speak of Mayo, Cleveland and NEMC are each providing there expert care on 3 of our own today and all at just about the same time. There are 3 OR's, 3 teams and 3 HCMA members benefiting from the hard work of the HCMA and our many members of this wonderful message board community. May they all have a successful day and may they all (Dr's, patient's, and support staff) know how wonderful we think they ALL are!!
Best wishes to ALL on this historic day...which also happens to be my first day of no longer having a "day job" in HR!
Peace to all,
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Hena was to have her myectomy today, July 19th, along with Laura and Connie...
We've heard how Laura and Connie are doing... has anyone heard from Hena at the NEMC and how her myectomy is going? Please post if you have any info... you know how we all await word on this. I'm surely not the only one who is concerned with how she is doing.
Thanks,
Jim
"Some days you're the dog... some days you're the hydrant."
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