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Lisa Inman Find out more about Lisa Inman
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  • Lisa's surgical trip

    Hi, this is Lisa's husband Richard learning to use the system to keep you posted on Lisa's adventure to Mayo. We are leaving Washington tomorrow, Saturday, late afternoon. I hope to keep you posted after we have checked into our motel in Rochester and learned their system so I can update the news as it happens. I will be looking for nice walks to take around town so if any of you have suggestions of parks, outdoor art, bird friendly environments, I love to hear them. Thanks, Richard Inman

  • #2
    Welcome Richard!

    I am so glad that you will be able to give us updates on Lisa's progress. Best wishes for a safe trip out to Rochester. Tell everyone at Mayo that I said Hello and I love them all! Lisa is going to be in such great hands.

    Richard - don't forget to get your rest every night. Lisa will need you to be sharp every day so you can bug her a lot to get out of bed and walk

    You are both in my prayers,

    John
    41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005

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    • #3
      Richard, I'm glad you're able to be there with her and for her. Please keep us updated.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Richard and Lisa, Best wishes, We'll be waiting for updates! Linda

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        • #5
          Lisa and Richard,

          Safe trip to the center. Soon you will be a member of the myectomy club. Best wishes and Richard we all look forward to hearing updates on Lisa. Thanks.

          Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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          • #6
            Richard and Lisa,

            Have a safe trip tomorrow. We all look forward to reading the updates over the coming week(s) and know that Lisa will do very well. You are in great hands as John can attest, so please try not to worry too much.

            Take care,

            Jim
            "Some days you're the dog... some days you're the hydrant."

            Comment


            • #7
              Lisa and Richard,

              Best wishes for a safe trip, and a successful procedure and recovery. You are in great hands over there and I know that you will do fine. I look forward to reading about your progress.

              Best,

              Cynthia
              Daughter of Father with HCM
              Diagnosed with HCM 1999.
              Full term pregnancy - Son born 11/01
              ICD implanted 2/03; generator replaced 2/2005 and 2/2012
              Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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              • #8
                Richard, being a Mayo patient for 30 years it is a second home. You will be in good hands. A great inexpensive place to eat right across from St. Mary's is Canadian Honker. They actually have healthy foods, my husband loves their breakfast he goes there while I have my heart biopsies. If you like liver and onions (not many do) they have the greatest. Good luck to you both.
                Midge

                Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                ICD&Pacemaker 1996
                Heart transplant March 19, 2004 @ Mayo Rochester
                Mom of Kaye.

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                • #9
                  This board is making me hungry today! LoL. First it's the cheesecake discussion from the Chicago Deli in Cleveland... now it's liver and onions from the Canadian Honker. Yummy! That's one of my favorite dishes (liver and onions, not honkers).

                  Jim
                  "Some days you're the dog... some days you're the hydrant."

                  Comment


                  • #10
                    Originally posted by mtlieb
                    This board is making me hungry today! LoL. First it's the cheesecake discussion from the Chicago Deli in Cleveland... now it's liver and onions from the Canadian Honker. Yummy! That's one of my favorite dishes (liver and onions, not honkers).

                    Jim
                    No honkers for you???
                    Reenie

                    ****************
                    Husband has HCM.
                    3 kids - ages 23, 21, & 19. All presently clear of HCM.

                    Comment


                    • #11
                      Hi Richard and Lisa

                      Lisa is lucky to have you support her.

                      Love and support help healing more than anything else.

                      I am praying for both Lisa and you. I wish Lisa the best regarding the surgery and recovery. She is going to a great place and will be very well cared for.

                      I will be checking the board for updates.

                      All the best to you both,
                      Eve
                      49 yrs. old
                      Diagnosed at 31.
                      Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                      First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                      Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                      Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                      My brother passed away suddenly at 34 yrs old from HCM.
                      2 teenage children, ages 17 and 15.

                      Comment


                      • #12
                        Well, we're about set. To the airport tomorrow to fly to Minneapolis, to Rochester on Sunday, appts. Mon. and Tues, surgery Wednesday 6/22. Finally, the last one of the spring myectomy club.

                        I made it to the end of the school year just fine, but it is always a push to get everything done that needs to be done. And today is my birthday (56). And tomorrow I'm off to Minnesota. Things have not been dull around here.

                        I got a head cold day before yesterday, it seemed like it was settled in yesterday AM. NOT GOOD. Dr. Ommen said if it got any worse they'd postpone surgery. NO WAY. So I am probably pickled in Emergen-C, Echinimide, Esberitox, and Natra Bio homeopathic/zinc nasal spray--but my cold is at bay or maybe nearly gone--hooray! I'm going to still keep taking all my potions though.

                        It is repetitive but true--I wouldn't be on this path without the HCMA--THANK YOU LISA SALBERG!!! And without all you folks in the forum I would never ever be so wonderfully prepared and supported. Thank you all, you have my deep appreciation.

                        We'll be in transit for a couple days, but then we'll be checking in with you.
                        Best wishes while I'm out of commision. Hugs, Lisa Inman

                        Comment


                        • #13
                          Hi Lisa
                          The next few days will be very hectic for you. I have been going to the Mayo Clinic/St. Mary's Hospital for a little over five years. As far as the staff, doctors, nurses, health care and just plain asking questions/getting answers.you absolutely will have no problem. I can't express the admiration I have for all of the people that I have come in contact with.

                          I live in Minnesota and the weather is beautiful here, so bring something cool. They are calling for rain next week.

                          Both you and your husband will have some tough times ahead of you, but all in all, you certainly will benefit.

                          You and your husband will be in my prayers.

                          There will be so many people checking for an update. Please keep us informed.
                          Esther

                          Comment


                          • #14
                            Lisa,
                            i just returned from a tour of Mayo Clinic myself! They are such wonderful people and such a beautiful little city. I saw the hotel you will be staying at - in fact Kelly pointed it out, it was nice to see exactly where you will be in a few short hours...The way I see it we can send our good thoughts to you and I am sure they will get there..because I have seen the location and the good thought know where to find you

                            Best of luck and I KNOW you are in GREAT hands!
                            Be well,
                            Lisa
                            Knowledge is power ... Stay informed!
                            YOU can make a difference - all you have to do is try!

                            Dx age 12 current age 46 and counting!
                            lost: 5 family members to HCM (SCD, Stroke, CHF)
                            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                            Therapy - ICD (implanted 97, 01, 04 and 11, medication
                            Currently not obstructed
                            Complications - unnecessary pacemaker and stroke (unrelated to each other)

                            Comment


                            • #15
                              Lisa

                              HAPPY BIRTHDAY!!!!!!!!!!!

                              And know you are in my heart and in my prayers

                              Shirley
                              Diagnosed 2003
                              Myectomy 2-23-2004
                              Husband: Ken
                              Son: John diagnosed 2004
                              Daughter: Janet (free of HCM)

                              Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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                              Today's Birthdays

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