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Myectomy - Tuesday June 14th


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  • Myectomy - Tuesday June 14th

    Hi everyone,
    I have been here at the CCF since Tuesday night. What a hospital. Dr Lever and Staff are really the best i have ever met or dealt with.

    Anyway, I am heading in at 5:15am on tuesday. I have not yet met with Dr. Lytle (Am meeting him monday) but everyone has told me both here and in the hospital that i am in great hands so really at this point i am not yet that nervous - I am sure tho by monday night that will all change,...

    We will keep everyone updated

  • #2
    I'm sure you will go through this with flying colors. Thanks for checking in. I am looking forward to your updates!


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      I personally had my last myectomy at St. Mary's Hospital in Rochester (Mayo), I do praise them highly.

      From what I've read from people that has had their surgery at CCF, they highly recommend CCF.

      I will pray that your surgery is a success.

      Please keep us updated.


      • #4
        I wish you the best possible experience at CCF. Please let us know how things are going on the pther side.


        God Squad co-moderator
        Nothing is as gentle as strength and nothing is as strong as gentleness


        • #5
          Wishing you the smoothest possible going, and some great walks later in the summer! I will be thinking of you daily this week as you move through your surgery and post-op time. Best wishes to you and your wife and family too, Lisa Inman


          • #6
            Vinnie and family,

            I will have you in my thoughts. I hope that your surgery is a huge success and that this is the beginning of a wonderful new chapter in your lives.
            Daughter of Father with HCM
            Diagnosed with HCM 1999.
            Full term pregnancy - Son born 11/01
            ICD implanted 2/03; generator replaced 2/2005 and 2/2012
            Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


            • #7

              I'll be thinking of you on tuesday, and look forward to hearing the updates on how you are doing. I was in the 5:15 am slot as well for my myectomy with Dr. Lytle. It's tough getting any sleep that night before, so if you can't... don't sweat it. Just relax with your family as much as you can and know that you get to sleep all day on tuesday while everyone else does all the work! If you enjoy hunting by the way, you'll get a kick out of Dr. Lytle's office. LoL.

              You are going to do extremely well through your surgery and recovery Vinnie. You are well-prepared and have tons of support. Please have someone let us know how you are doing on Tuesday. You don't want me to have to get after you like I did with Eve.

              "Some days you're the dog... some days you're the hydrant."


              • #8

                Remember, whatever you want to take Tuesday morning (that Dr Lever said is okay to take) take it in the hallway before you walk in to the prep area. They have their own rules and one is "you can not take anything even if your doctor said you could!"

                See you at next years meeting and it will be your turn to answer the questions.

                Wishing you an uneventful recovery.

                Stuart & Barbara
                Cleveland Myectomy Club
                August 31, 2004


                • #9

                  Wow! your surgery is this week already? I kind of missed out on last week. You are going to do so great and you are in the best hands. Keep relaxed and have positive thoughts. I took my portable cd player all the way into the operating room with me and that kept me relaxed and calm. Let us know how it goes as soon as you can. Do everything the docs say and be really nice to the nurses.....you will find that they will be there for your every need if you are extra nice!

                  Take care buddy I will be praying for you!

                  41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005


                  • #10
                    My surgery two years ago was with Dr. Lytle at CCF- septal myectomy. I remember feeling really nervous. I had never had any type of surgery before- much less heart surgery. But it will be fine- positive thoughts really do help.
                    I would encourage you to relax if possible- I found the hardest thing for me was the loss of control feeling in recovery right after the surgery. Know that you are in great hands with Drs. Lytle and Lever and the staff at CCF are great. Be patient with yourself during recovery- it takes a little while. But in the end you'll feel like a different - healthier- person.
                    Take care and we'll be thinking of you...
                    Diagnosed 8/2002, Myectomy (CCF) 3/2003, ICDs 2003,2006 (fired once appropriately), FT researcher, wife and mom of 2 boys (17 and 20).


                    • #11
                      Hi Vinnie

                      I know the feeling, I was excited and nervous at the same time.

                      Please be sure to remember to bring your CD player and headphones. They give a really helpful relaxation/meditation CD to listen to before surgery.

                      (But there were times before surgery when I could not concentrate very well, so I switched over to some rock stations. But their CD was relaxing and more helpful.)

                      Isn't Dr. Lever and everyone there really great!

                      You are in such great hands.

                      I am wishing you the best and keeping you in my prayers.

                      49 yrs. old
                      Diagnosed at 31.
                      Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                      First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                      Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                      Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                      My brother passed away suddenly at 34 yrs old from HCM.
                      2 teenage children, ages 17 and 15.


                      • #12
                        Vinnie, I'll be thinking of you and your family and waiting for progress reports. Best wishes, Linda


                        • #13

                          So glad you arrived safely. I know you are nervous and anxious but I in turn know that you are in some great hands there. Dr Lytle and Dr Lever are the greatest. Don't forget to ask all the questions you want because they are ready to answer them for you. It is hard on the family also as they have to sit and wait for information on how you are doing. I will be keeping you and your family in my thoughts and prayers this week and I wish you all the best. Keep us posted on how you are doing.

                          Vinnie, I pray peace and comfort for you doing the next few hours while you wait and I pray that God will guide the hands of the surgeon and all that help him. I pray for you family. I pray for the speediest of recoveries for you.

                          Just keep in mind you are going to feel better than you probably have in years after you recovery and that gave me light at the end of the tunnel knowing this.

                          May God place his arms around you and protect you and comfort you.

                          I pray that God will place his loving arms around you and hold you in the comfort of his love.


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