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here comes another one...6/22

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Lisa Inman Find out more about Lisa Inman
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  • here comes another one...6/22

    Hi friends:

    I've got my myectomy appointment set now too: mine will be Wed. June 22 at the Mayo Clinic in Rochester with Dr. Schaff as surgeon. Pre-op appts with Dr. Ommen and Dr. Schaff on June 20-21. These are the dates I wanted, the first possible surgery dates after my school teaching is done the week before (to maximize the recuperation time I have before school starts again in Sept.) My husband Richard will be going with me and is always very solid support for me.

    My focus now is on staying positive, looking forward to a couple months after the surgery, doing what I can to be in best physical shape for it. I am open to ideas and information anyone has on ways to physically and mentally support healing well. I'm doing pretty well with it. Cognitively I know it is the best thing to do, given my "numbers" (gradient, etc.) Emotionally, like Vinnie also says, I know I will get more nervous when it comes to actually voluntarily walking in and saying, yes, here I am...go for it.

    Confusing to go back and forth between feeling like (and being) a fairly healthy busy person who doesn't feel at all in need of major surgery; then having those days when I'm SOB while doing little more than standing still and ready to say OMG, let's get that myectomy, now! Then comes the self talk reminding me that it isn't magic that gets rid of HCM or necessarily gets rid of symptoms, but will be good for me.... I guess at some level I am constantly processing it. Fortunately, working full time taking care of (37) 3-6 year olds keeps my mind occupied and very much in the present!

    Vinnie, I guess they'll all be able to talk us through this together. But first comes Eve and Harry, and continued recoveries for Steph and Art and Jim's mother.

    Thank you everyone for all the support you give! And also, acknowledging that all this information I know comes from or through you folks.

    55 days.....

    Best wishes to all, Lisa Inman

  • #2
    Lisa, you continue to amaze me at how well you are taking all this. You'll be in my thoughts and prayers as the time draws near.

    On a side note, I'm glad that so many of our members are getting good care and have the opportunity to have their myectomies done by people who know what they're doing in the operating room.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Lisa,

      I am glad you have you dates arranged and that you have your plan in order. You are in GREAT hands and I know they will take GREAT care of you at Mayo.

      Best wishes,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Hi Lisa! So glad to here you are on your way. Please feel free to pm me anytime to chat. Your surgery is later in June than mine so I will try and keep you posted about my progress so you are aware of what is coming. I think we will both be so happy that we decided to do this in the end.

        Best of luck and I will be keeping you in my thoughts and prayers!

        Vinnie

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        • #5
          Lisa .

          It is good to have the date now. Being a realist for me I know practicality requires structure for me to go through events. You will be able to make details and plans finalized for the surgery. I am glad you are going to be able to get this help.

          Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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          • #6
            Lisa,

            Wishing you the best.
            We are all here for you.

            Stuart
            Cleveland Myectomy Club
            August 31, 2004

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            • #7
              Hey-

              Im 18 years old, Wisconsin. I had my myectomy about 3 or 4 months ago at Mayo with Dr. Shaff and I also have been seen by Dr. Ommen. If you have any ?'s about it i'd be more than happy to awnser them. Goodluck

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