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  • Ralph
    replied
    Eve,

    I so sorry you are having to deal with you husband at this time. This is your time to get better, and believe me, Dr. Nick Smedira is the person who can make you feel so much better. Dr. Smedira performed my myectomy and double by pass last March 18, 2004. I can't believe how much better I feel and how much more I can do. I just turned 65 and am looking forward to living with much more quality of life than I thought was possible just one year ago.

    You will love Drs. Lever and Smedira, they are the best. The nurses in CICU are awesome also, I know I was there for 26 days. (I had a massive infection) But don't worry you'll do fine. If I had to do it all over again, I'd walk in CCF today and do it.

    God Bless you,

    Ralph

    Leave a comment:


  • michael obrien
    replied
    hi eve,Im sorry that you have to go through all this right now.I like what burt said,and I agree with him.It is not easy to accept what is happening in your life,but you must cont.to pray and push forward.you have the myectomy scheduled,and you should definetely make some time to head down to the shore.sometimes when we are at our lowest point things change for the better.this might be the beginning of a new and exciting chapter in your life.God bless you and I will keep you in my daily prayers.also dont stop reaching out to your hcma family we care and want whats is best for you take care mike

    Leave a comment:


  • progers
    replied
    Hi Eve,

    Just try and get some rest so you can get over this flu thing. With luck you should shake it soon and get on with your myectomy. If the worst comes to worst they may just delay your myectomy for a few days. But sooner rather than later you will do the operation and that is something to look forward to.

    I am even starting to feel better. Its taken almost a month, but my energy has improved and my migraines are starting to become less frequent. I can't tell if all my symptoms have improved, but I am certainly not getting any chest pain after big meals like I used to! This is THE first major benefit I have noticed from the operation. I'm still not sure if the SOB is gone, but hey at least I've made it this far. SO, if I can do it so can you!

    Best of luck and keep us posted on how things are going.

    Take care,

    Paul

    Leave a comment:


  • Eileen2345
    replied
    I'M SICK!!!

    Darn it. I woke up yesterday morning with this cold/virus thing that my kids had (actually my daughter is still sick, she has been sick since this past Sunday, it's now Thursday night).

    Yesterday I was going to go up to my mom's house, but I got sick in the morning before I could go.

    I hope I can get over this soon. I need to pack in a week from now.

    Bummer.

    And what really bites is that Ryan did not get it. (Of course, he was not taking care of the kids when they came down with this.)

    I hope I can still go to Cleveland.

    Thanks for listening everyone, and thank you so much for all of your support and the PMs. I am sorry I have not replied, I am so tired. But I honestly do appreciate all of you concern and information.

    Hugs to All

    Eve

    Leave a comment:


  • Burton Borrok
    replied
    Go for it Eve,
    You have an obligation to take care of yourself now, and you have to stay healthy for what lies ahead.

    You go listen to Leanne now. She may be from down under, but she sure knows which way is up. There’s nothing wrong with her understanding.

    Burt

    Leave a comment:


  • progers
    replied
    Hi Eve,

    I just wanted you to know that we are all thinking about you and your upcoming operation. I am sure its going to go well - you are at one of the best places. Just try to surround yourself with people of care about you. Your mom will be there so that is great. You will certainly need lots of rest after your operation.

    Keep us updated on all the developments.

    Take care of yourself,

    Paul

    Leave a comment:


  • shirleymahoney
    replied
    Eileen

    Go for it , i would.

    He needs to take care of his kids you know, and maybe then he will learn to appreciate you more, i left mine with their dad and was gone 2 weeks and he said he would never say i did nothing again, but really you take care of yourself so you can be there for them later ok

    Shirley

    Leave a comment:


  • Eileen2345
    replied
    Thank you everyone for all of your support. I sincerely appreciate it.

    I am staying at the Suites Hotel instead of the Conference Center, they said the Conference Center is booked.

    I was hoping to make this somewhat easier for my 65 year old mom (who also has HCM) to go back and forth.

    My daughter has the flu really bad, I am so worried I will get it too. I leave in about 11 days and the last thing I need is the flu. It will cancel everything.

    I may go to my mom's in Nothern Arizona a stay and let Ryan take care of the kids. (Oh Ryan will hate that, he loves his freedom and not taking care of sick kids.)


    Eve

    Leave a comment:


  • harryandleanne
    replied
    Hey there Eileen

    What a pretty lady you are. My bf has HOCM (soon to have a myectomy) and when he was sick the same thing happened to him. The woman he was living with at the time went out and had affairs with numerous men and left him home alone often after just coming out of hospital. He stayed away from women and relatiohnships for five years, and then he met me. We have known each other over a year now and I am just so glad that foolish woman gave him up so easily. I have won a prize in him.

    Your time will come and you will realise it was meant to be. His loss and some lucky man's gain I think.

    Take care

    All the best
    Leanne

    Leave a comment:


  • Eileen2345
    replied
    Thank you so much everyone for all of your support.

    It has been a depressing time for me here at home. I keep driving myself crazy with my imagination. She must be pretty, sexy and fun.

    I don't talk to Ryan other than with 2 word answers to his questions.

    I know I need to focus on my health right now, but sometimes I cannot help but to feel so unattractive and unwanted.

    Sorry to whine, I wish I could have some wine with my whine.
    But I do have some Xanax, and I have taken them as directed, no holding back this time.

    I have been drowing myself in music, like I did when I was a child when my father was drunk and abusive.

    Sorry, I'll stop my pitty party for myself now. Life goes on. It could be worse.

    Thank you again,

    Eve

    Leave a comment:


  • Burton Borrok
    replied
    Hi Ninny,
    Yeah, I’m the guy who wrote about ‘your own private place’ which you can go to in your mind and escape from all the stress and strains of the moment.

    Now I have another thought for you. Although we often may not understand it, G-d does not do things capriciously. There is a reason for what is going on in your life, and you must have faith that in the end you will be a better person because of it. No one can look into the future and determine how your home situation will unfold, - and the same is true for your medical condition, but whatever happens – it will be part of G-d’s design for you.

    Keep that in mind through all the slings and arrows of outrageous fortune. Go escape to your private place when you need some rest and recuperation, and you will see all this through to a successful conclusion.

    We are all children of a very nice G-d, and He does know what He is doing.
    Burt

    Leave a comment:


  • Ronnie
    replied
    Eve-
    I'm so sorry you have so much to cope with, but you can do this!

    I went to Cleveland in December, to have 2 stents implanted. We stayed at the Intercontinental & I highly recommend it. It will be so much easier for your Mom to get back & forth to be with you. They have 3 restaurants & they will pack food "to go" so your Mom can bring you a meal & bring her own meal if she wants to be with you & still have dinner.
    It is more expensive than other hotels, but it's worth it & the rooms are very nice.

    Regarding your Husband, ignore him for now, as best as you can. Concentrate on YOU & Your Children-that's all that's important. Deal with the husband issues in a few months.

    I'm glad you have your Mother's support-how kind & generous of her to go the CCF with you . She can be your source of strength.
    We are all praying for you, you are not alone.

    Leave a comment:


  • Lisa Inman
    replied
    Eve, I am so sorry for your home situation. I can't imagine coping with the emotional and the physical stuff at the same time, but we rise to the occasion as we need to, somehow. So I am wishing you the ability to stay strong and clear about what you need for your physical and emotional health and what your children need. I am so glad that you are going to have the surgery and that your mother is going to be your support. Remember how Burt (I think) said awhile back to someone to create a calm mental place you can visualize clearly to "go" to and escape to--my chiropractor was talking about having such a place for healing time--sounds like your place is at the ocean, maybe with your kids. That is my mental vision of/for you. We are at a distance, but still feel close to you and offer all the support we can. Hugs to you, Lisa I.

    Leave a comment:


  • Pam Alexson
    replied
    Eve ,

    I am sorry for you. This is the time when you need to have everything be about you and for you. . We are all here for you . I am glad your mom will be with you.

    Pam

    Leave a comment:


  • Largehearted
    replied
    Eve.

    I am so sorry that things on at home are so difficult. You need to be well for your children. We will lift you up in prayer for your physical condition as well as the family situation.

    Peace,

    Leon

    Leave a comment:

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