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Planning to have myectomy..

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  • Planning to have myectomy..

    Hello,
    I have been advised by my HOCM specialist that i am in need of a myectomy/Valve repair. My cardio. has agreed with this and they are urging me to have it completed as soon as possible. As much as I would prefer not to do it - I have talked with Lisa about it and also read so much on this site about this procedure and how great it is once completed. I am starting to see that it would be a bigger mistake not to go ahead with it.

    I would love the oppertunity to speak first hand with some people who have gone through this to get a better idea of what to expect, how it unfolds and what it is like once it is over.

    Thank You

    Vinnie

  • #2
    Vinnie
    Congrads on your decision to improve your quality of life!
    Feel free to pm/call me with any specifics you need to discuss.
    GOOD LUCK
    RONNIE

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    • #3
      Good luck Vinnie

      My boyfriend Harry is having a myectomy too..we are ery hopeful of a great outcome.

      Leanne

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      • #4
        Hey Vinnie, I just had my myectomy on March 1st at the Cleveland Clinic. I'm going on April 19th for my 6 week checkup!! Feel free to pm me and I will tell you ALL about it. This was my first surgery of any kind and I was scared out of my mind.... I now know that I made the right choice. Good luck and keep us all updated Steph
        Had myectomy on March 1 2005 and was implanted w/an ICD on April 28 2005....please refer to me now as the Bionic Woman

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        • #5
          Vinnie, Thinking of you and wishing you the best, Linda

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          • #6
            Vinnie , glad to hear you have made the best decision possible for you. Thoughts and prayers.

            Pam
            Dx @ 47 with HOCM & HF:11/00
            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
            Lead failure,replaced 12/06.
            SF lead recall:07,extracted leads and new device 2012
            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
            Genetic mutation 4/09, mother(d), brother, son, gene+
            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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            • #7
              Cleveland

              Hi everyone - thank you for the responses and the messages!!

              Well my cardio Called me yesterday with the phone number for Dr. Topol in Cleveland. Has any one worked with this Doctor. He will be the one coordinating with Dr's lever and lytle for to get me in

              Thanks

              Vinnie

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              • #8
                Well you are now officially part of the spring myectomy gang. I'll be scheduling mine for mid-June. Feel free to be in touch on the board or pm me as we go through this before-myectomy phase. Best wishes, Lisa I.

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