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myectomy and heart failure

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Eileen2345 Find out more about Eileen2345
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  • myectomy and heart failure

    Hi everyone

    I have a couple of questions...

    -- Are the chances of a successful myectomy greater if there was no heart failure before the surgery?

    -- I wonder how many people have had successful myectomies with class III/IV diastolic heart failure before the surgery?

    (I have not heard from Cleveland yet. I called them last Tuesday, and she said the doctor has not had a chance to see my echo films yet. Maybe they'll call soon.)

    When I am feeling this tired and weak all the time, I get discouraged.

    I wonder how many people who have been in my situation, class III/IV heart failure went to a class II after a myectomy.

    Thank you for any information.

    Hugs,
    Eve

    **EDITED: Another question: Was anyone's myectomy successful or not successful with class III/IV heart failure?

    I am looking for any information I can get.

    Thank you.
    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.

  • #2
    Eileen

    Ok you know what happened to me being i'm trying to get on the list and i had moderate to severe heart failure, i still think the myectomy helped some without the obstruction my heart is better then it was before it is better because i have really no gradient to speak of just this stiff heart, which in turn keeps me short of breath and tired and the chest pain is horrible

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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