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Looking for Surgeon in Arizona

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rand1234 Find out more about rand1234
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  • Looking for Surgeon in Arizona

    Hi - It has been recommended by 2 cardiologist for me to undergo a Myectomy. Does anyone know of a qualified cardiac surgeon in Arizona

  • #2
    Welcome - I'm sure you will have many others welcome you also. I'm not sure that anyone will be able to give you names for your area, but I hope you will call Lisa and talk with her. She will be able to give you a tremendous amt of info and provide some resources for you to investigate. Many here have had myectomies and will be happy to help you answer questions about that as well as offer support along the way. Best wishes, Linda

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    • #3
      Lisa's phone number is 973-983-7429. She knows more about which doctors perform which procedures than anyone else I know.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Hi -
        I live in Phoenix, Arizona and I know there are several members that post regularly that live in Arizona. Choosing a doctor, especially a surgeon, is a tricky decision when HCM is involved. Lisa attends many medical conferences every year, AHA, ACC & Heart Rhythm Society (formerly NASPE). She meets doctors and educates many on HCM and pulls many into the HCMA as "advisers" and/or knowledgeable advocates for the condition.

        My recommendation is to speak with Lisa off line (on the phone) so she can help you with either an HCM specialist closest to your area or a known surgeon in Arizona that is very familiar with HCM and the workings of the HCMA.

        Sorry we can't just spit out a name for you, but getting the right doctor can be as tricky as the condition of HCM. I hope that you are able to speak with Lisa within a short time. She is usually in the office on Tuesday's and Thursday's each week.

        Good Luck and God's Speed!
        Best Regards,
        Sharon Bates

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        • #5
          Call me in the office on Thurday and we can discuss options.
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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          • #6
            Okay, I'm getting on my soapbox here......

            No there is not a qualified surgeon to do a myectomy in Phoenix -- trust me.
            You're lucky to find a cardio that knows something about HCM in the Phoenix/Scottsdale area.
            In the past 10 years I have seen numerous cardiologists (in the double digits).

            I have finally found one cardio that know something about HCM/HOCM.

            My last cardiologist said that if I "wanted" a myectomy, I would have to go to some teaching hospital in Georgia to have it done since I do not have health insurance.

            Don't let anyone here in Phoenix do a myectomy on you, especially the Arizona Heart Institute/ AZ Heart Hospital. I have heard of some very unfortunate HCM surgeries that took place there.

            (Disclaimer: This is my expressed opinion, not the opinion or judgement of THE HCMA.)

            When you talk to Lisa, she will give you the most qualified places to call to get the proper consultation and treatment.

            I wish you the best neighbor!

            Eve
            49 yrs. old
            Diagnosed at 31.
            Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
            First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
            Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
            Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
            My brother passed away suddenly at 34 yrs old from HCM.
            2 teenage children, ages 17 and 15.

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            • #7
              LoL. You GO, Eve!
              "Some days you're the dog... some days you're the hydrant."

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