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Mom's Cox-Maze & Myectomy April 6


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  • #46

    I'm glad you got some time off... don't feel guilty about it... you need it, too.

    I'm glad your mom is progressing well, and I hope the white count thing will prove to be a small issue.



    • #47

      I hope your mom is doing better every day. Somehow I've missed your posts - I guess I've been caught up in my own recovery process - which has been tough. Your mom WILL start feeling much better. I had all kinds of problems and glitches when I was in hospital last month for my myectomy. I was also battling fever, but thankfully it didn't develop.

      Keep us posted buddy.

      Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.


      • #48
        Sorry for the late update, but SHE DID IT! She's home now! Came home Wednesday. They sent her home with a stockpile of prescriptions, mainly diuretics, because she's still retaining fluid in her legs. But all is well! She's feeling great. She's tired, but that's normal. The best part of all, she's off ALL HEART MEDS. NO MORE TOPROL! YAY! AND, even better, SHE'S IN SINUS RHYTHM! Amazing! Anyway... I'm tired and am gonna go to bed. And, I gotta say this--I know everyone recommends Mayo or Cleveland, but Dr. Damiano at Barnes-Jewish was an amazing doctor, the care she received was exceptional, and the results are spectacular. So, if people are looking for a place to get a myectomy, I would seriously consider Dr. Ralph Damiano and Barnes-Jewish Hospital in St. Louis.



        • #49

          This is fantastic news!!!!

          I wish your mom continued improvement and good health.

          What a wonderful blessing. I am so happy for you all.

          All the best,
          49 yrs. old
          Diagnosed at 31.
          Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
          First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
          Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
          Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
          My brother passed away suddenly at 34 yrs old from HCM.
          2 teenage children, ages 17 and 15.


          • #50

            That is such great news , I know she has to feel better now just being home in her own bed

            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


            • #51
              Jim, What great news!!!!! Hopefully you are ALL sleeping better now and mom can be so much more comfortable in her OWN bed....I'll be thinking of her and wishing that each day be a better one Steph
              Had myectomy on March 1 2005 and was implanted w/an ICD on April 28 2005....please refer to me now as the Bionic Woman


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