Hi,
I had my septal myectomy January 27, 2005 at the Cleveland Clinic. The surgery went fine and all of the doctors and nurses said that I did great. I was dismissed on the afternoon of January 31st.
However, I'm having several snags along the way. A few days after I was home I was nauseous and lost my dinner. I went to the emergency and the doctor said that he didn't think that it was anything to do with my surgeries because there were so many bugs going around. He gave me some medicine for my stomach and I went home.
The nausea started to clear up , but I still don't have a true hungry feeling. I was walking three times a day and went shopping with my sister and went to one of my meetings, and for several days was able to be fairly active.
Then I really started feeling nauseous and had a pain on my left side in the back and starting behind the shoulder blades and down. It was a sharp pain about like sciatica , but it wasn't constant. If I would bend a certain way or try to get out of bed it would hurt. I also started getting a little short of breath which was not a symptom for me before surgery.
My sister took me to our emergency. I live in a small town in Indiana with a population of around 13,000. They x-rayed me and found that I had fluid around my lungs. He said that there was more on the left than on the right. After calling my doctor and the Cleveland clinic they ended up taking me to a hospital at Ft. Wayne which is around 35 miles away.
I was there 4 nights . I had not seen my new cardiologist at that time. My appointment was for March 25th and they couldn't move it up sooner. I ended up with cardiologists from another group. They drew blood and blood gasses, took x-rays and monitored my heart. They gave me Ibuprophin which helped the back pain, and he gave me prevacid. It didn't seem to help and I was still nauseous. When I went home , He prescribed 2 a day which I hope will help. I couldn't eat much breakfast or lunch today, but I feel as though I can eat dinner tonight.
Before they sent be home I had another x-ray and the doctor said that it was very similar to the x-ray I had when I arrived even though I lost around 4 lbs of water in 4 nights that I was there due to the lasix. They sent me home with a prescription for one lasix to be taken each day. I have an appointment in a week to have another x-ray and blood check. I know that they are trying not to be too invasive, but do you think that they are not taking care of this soon enough?
I would also like to know if anyone has had problems with fluid around the lungs. Also I find it difficult to know where to call when I need help. I feel a bit like a hot potato being passed around. My hometown clinic would want me to call Cleveland. I called Smedira's nurse and she thought that I should check with my cardiologist which I haven't seen yet.(The reason I'm getting a new cardiologist is because I thought that the one that I had before didn't know a whole lot about HCM so I went to Dr. Lever for a 2nd opinion.
Bettie (I've written messages on here before. I'm 66 and wasn't diagnosed with HOCM until about 3 years ago,
How long does it take to be able to eat a regular meal again?
I had my septal myectomy January 27, 2005 at the Cleveland Clinic. The surgery went fine and all of the doctors and nurses said that I did great. I was dismissed on the afternoon of January 31st.
However, I'm having several snags along the way. A few days after I was home I was nauseous and lost my dinner. I went to the emergency and the doctor said that he didn't think that it was anything to do with my surgeries because there were so many bugs going around. He gave me some medicine for my stomach and I went home.
The nausea started to clear up , but I still don't have a true hungry feeling. I was walking three times a day and went shopping with my sister and went to one of my meetings, and for several days was able to be fairly active.
Then I really started feeling nauseous and had a pain on my left side in the back and starting behind the shoulder blades and down. It was a sharp pain about like sciatica , but it wasn't constant. If I would bend a certain way or try to get out of bed it would hurt. I also started getting a little short of breath which was not a symptom for me before surgery.
My sister took me to our emergency. I live in a small town in Indiana with a population of around 13,000. They x-rayed me and found that I had fluid around my lungs. He said that there was more on the left than on the right. After calling my doctor and the Cleveland clinic they ended up taking me to a hospital at Ft. Wayne which is around 35 miles away.
I was there 4 nights . I had not seen my new cardiologist at that time. My appointment was for March 25th and they couldn't move it up sooner. I ended up with cardiologists from another group. They drew blood and blood gasses, took x-rays and monitored my heart. They gave me Ibuprophin which helped the back pain, and he gave me prevacid. It didn't seem to help and I was still nauseous. When I went home , He prescribed 2 a day which I hope will help. I couldn't eat much breakfast or lunch today, but I feel as though I can eat dinner tonight.
Before they sent be home I had another x-ray and the doctor said that it was very similar to the x-ray I had when I arrived even though I lost around 4 lbs of water in 4 nights that I was there due to the lasix. They sent me home with a prescription for one lasix to be taken each day. I have an appointment in a week to have another x-ray and blood check. I know that they are trying not to be too invasive, but do you think that they are not taking care of this soon enough?
I would also like to know if anyone has had problems with fluid around the lungs. Also I find it difficult to know where to call when I need help. I feel a bit like a hot potato being passed around. My hometown clinic would want me to call Cleveland. I called Smedira's nurse and she thought that I should check with my cardiologist which I haven't seen yet.(The reason I'm getting a new cardiologist is because I thought that the one that I had before didn't know a whole lot about HCM so I went to Dr. Lever for a 2nd opinion.
Bettie (I've written messages on here before. I'm 66 and wasn't diagnosed with HOCM until about 3 years ago,
How long does it take to be able to eat a regular meal again?
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