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Rachelle Mother of Dylan, 15 and Zach, 13. Dylan recently diagnosed with HCM. Find out more about Rachelle
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  • Questions about myectomy

    I'm non-obstructive but have a massive septum measuring 30.5 mm (pacemaker and defibrilator implanted for risk of sudden death) . I have symptoms that include daily palpitations, several runs of tachycardia and some chest pains. I know that my size septum could cause problems later as I age such as afib, systolic anterior motion, diastolic dysfunction and risk of stroke. My question is, with all of this looming over my head for the future, should I look at a myectomy now? Would it allow my heart to function better and eliminate some of the conditons I could develop if I do nothing? Also, does anyone know anything about the increase risk of stroke for HCM patients. My doctor has never mentioned this but I read it is a real concern in a Cleveland Clinic article.

    Thanks!
    Rachelle

  • #2
    Hi Rachelle. Current theory is that myectomy isn't of use to a non-obstructed heart. It's used to relieve symptoms caused by obstruction and increase blood flow. Unfortunately, non-obstructed patients don't have many options beyond medication at the present time.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Thanks Reenie. Do you know if stroke in and of itself is a concern with HCM or is that only a concern when a person develops afib?

      Rachelle

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      • #4
        I'm not sure on the incidence of stroke in HCM without A-fib. I think it's mainly with the afib, but I hope that someone else here knows more about it. I do know that endocarditis, which an HCM heart seems to be more prone to, can also lead to stroke. Maybe it's the turbulence of the blood flow? I wish I had more answers for you.

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

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