Questions about myectomy

[Rachelle]

I'm non-obstructive but have a massive septum measuring 30.5 mm (pacemaker and defibrilator implanted for risk of sudden death) . I have symptoms that include daily palpitations, several runs of tachycardia and some chest pains. I know that my size septum could cause problems later as I age such as afib, systolic anterior motion, diastolic dysfunction and risk of stroke. My question is, with all of this looming over my head for the future, should I look at a myectomy now? Would it allow my heart to function better and eliminate some of the conditons I could develop if I do nothing? Also, does anyone know anything about the increase risk of stroke for HCM patients. My doctor has never mentioned this but I read it is a real concern in a Cleveland Clinic article.

Thanks!
Rachelle

[Reenie]

Hi Rachelle. Current theory is that myectomy isn't of use to a non-obstructed heart. It's used to relieve symptoms caused by obstruction and increase blood flow. Unfortunately, non-obstructed patients don't have many options beyond medication at the present time.

Reenie

[Rachelle]

Thanks Reenie. Do you know if stroke in and of itself is a concern with HCM or is that only a concern when a person develops afib?

Rachelle

[Reenie]

I'm not sure on the incidence of stroke in HCM without A-fib. I think it's mainly with the afib, but I hope that someone else here knows more about it. I do know that endocarditis, which an HCM heart seems to be more prone to, can also lead to stroke. Maybe it's the turbulence of the blood flow? I wish I had more answers for you.

Reenie