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In the same spirit as Felix's post last week, today is the one year anniversary of our daughter Caitlyn's successful myectomy at Tufts/NEMC. We've been absent from the message board for some time (about 6 months, actually) while we took a therapeutic mental holiday but we're now happily back. Caitlyn, now 15, is doing great. She had always been blessed by minimal symptoms, but I think she really notices a difference now in how she feels compared to before. Before the surgery she had exhibited a high gradient (130s and 140s) while on 300 mgs. of Veralan PM (verapamil) with a septum that measured about 18mm. At her last checkup with her local ped. cardiologist her gradient was at 10 or below and her septum is at 12 mm. She is now on 25 mgs. of Toprol. She even did JV volleyball in 9th grade this Fall and it was a thrill for her to do some physical activities with her friends again after three years since her initial diagnosis. And, of course, being 15 now she is driving! Pass the beta-blockers to me! -just kidding...
It was good to take a break, but it is really nice to catch up with the message board again and see how the HCMA keeps growing exponentially! After taking last summer off, we are hoping to make it to the annual meeting in June and look forward to reacquainting with old friends and meeting some new ones.
It was good to take a break, but it is really nice to catch up with the message board again and see how the HCMA keeps growing exponentially! After taking last summer off, we are hoping to make it to the annual meeting in June and look forward to reacquainting with old friends and meeting some new ones.
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