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My mom is up for a Myectomy... What can we expect?


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  • #46

    Oh no, not again. I hope this one works for good!

    Please let us know how you are doing when you can.

    Well wishes,

    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.


    • #47
      Jim, I hope it takes this time for good, or they can find a good Rx to help. I don't blame you wanting to stay off the amioderone. I was on it last year after my surgery until I went into sinus rhythm, thank God! I now am on atenolol 50mg and am doing well. I do have some mild PVC's but nothing like I had prior to surgery. My a-fib/flutter stopped very soon after I got out of CCF. It began with surgery March 18, 2004 and I left CCF April 15th.

      Hang in there and I'm praying for good results.



      • #48
        Carol/Perri (Perri is a very "cute" name, if that's your 1st name)
        I don't understand! I was of the thinking that 1 Myectomy was all anyone ever had. I think (not frequently) my Dr told me I would not ever need another Myectomy, that 1 is all you ever need.
        Could you expllain? Did your 1st Surgeon do a bad job?
        I don't plan to add this to my "worry list", but I'm very curious.


        • #49
          The majority of myectomies are a one shot deal - a minority may need to be redone for many reasons - 1-age if you are very young (a child) the heart is still growing and thus a need for a 2nd procedure. 2- some are not done right the 1st time - thus need to be re-done 3. some very rare adults need to be redone althought I am only aware of 1 such case in an adult.

          One is normally the number

          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)


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