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Alcohol Ablation

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ihss1898 Find out more about ihss1898
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  • Alcohol Ablation

    I had my alcohol ablation about 1-2 years ago. I had it done at Loyola Hospital by Dr. Leya. It went smooth, when I came out I had a normal heart rythym for the first time ever! It was exciting. I really felt good. However, the past year I have gone in and out of heart failure and SOB has resumed. So, something is not perfect right now. Has anyone else gone throuygh the same thing? I had it when i was only 26 years old but at the time that I had it done it was the thickest he had seen. They said I really needed to have it done.
    age:28,HOCM, Alcohol ablation 2002, AICD implant 2000&2004(replace)Atrial Fib, heart failure(since 2004)

  • #2
    I have spoken to a few people similar to you. This is a very complicated issue and one that needs a great deal of attention. I know of several young - under 40- who have had alcohol ablations who soon after went into heart failure and progressed into burnt out HCM. These cases are very much a concern. I think a visit to a specialist who really understands the entire HCM process will shed some light on what is happening here.

    Best wishes,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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