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JOE B Find out more about JOE B
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  • hi 7days past surgery

    made it through so far long ride home some s.o.b. when talking very little upper body strength getting better mild mid chest pain some popping taste buds out of whack other wise doing good after myectomy/mytro valve rework /1 bypass 12/31/04 thanks all for support
    Joseph D. Bethge

  • #2
    I'm glad to hear you're doing so well.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Hi Joe

      You're over the worse Now is the time to let your body mend. Please don't overdo it, but you must be a little active. Follow your doctor's instructions.

      Wishing you a speedy recovery.

      Take care
      Esther

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      • #4
        Joe,

        Glad to hear you made it home safely. Hope you are feeling better soon.

        Kelly
        Life is 10% what happens to you and 90% what you do with what happens to you.

        Comment


        • #5
          Joe,

          I too am very glad to hear that you made it home safely. You've had a lot of work done, so be good to yourself, and try to get your walking in when you can. Please continue to keep us posted on how you are doing and don't be afraid to ask questions from us myectomy veterans here. We're all more than happy to help you in any way we can.

          Take care,

          Jim
          "Some days you're the dog... some days you're the hydrant."

          Comment


          • #6
            Joe

            It is great you made it home that was the hardest for me also, but once i got home i felt alot better, like everyone else is saying here take it easy and do what your doctor wants you to do, if your doc gave you upper body exercising to do by all means do them, it does keep the soreness down or should i say the stiffness Take Care

            Shirley
            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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            • #7
              Joe,
              I am glad you are home and I do think you will be feeling much better in a few more days.
              Best wishes,
              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

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              • #8
                Joe,

                Good to hear your doing well. My chest still feels funny once in awhile, depending on how I lay on it. Taste buds were out of wack for about 3 months but they slowly came back. Do your exercises and listen to your Dr. Each day will get better...


                Tigger1
                " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

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                • #9
                  Re:

                  Hi JOE,

                  Glad to see that you are making progress. It's been 4 weeks since my myectomy at CCF and I'm getting better each day.

                  As Tigger says, Listen to your Dr and do exercises, but don't overdo it and listen to your body also. Some days when I overdo it, my body reminds me that it's still healing.

                  Take care,
                  Edwin

                  -------------
                  Myectomy Dec 9, 2004 CCF

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