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Myectomy question- How long do you feel better?


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Eileen2345 Find out more about Eileen2345
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  • #16
    Hi Shirley,

    Yes, I understand. I tell people that I am slow, but I eventually get there.
    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.


    • #17

      I am one of those who have gone on with their lives and do not visit very often

      My myectomy at Cleveland was 2 1/2 years ago. I can't say that I am great, but I am a 1,000 % better than before surgery. My biggest problem right now is my life long nemisis weight! Extra weight is probably why I don't feel even better.

      I barely could work prior to surgery and I was always worried I would have another syncope (fainting) episode. That has all gone away. I do still feel tired alot.

      Listen to the doctors at the Cleveland Clinic, if they say go for it, then I would!



      • #18
        Question on surgery

        I just read your posting. I have only one sentence about my feelings. If I knew how better I would be, I would not hesitate for surgery.

        with my nest wishes,



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