If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

what is a myectomy

Collapse

About the Author

Collapse

bennett Find out more about bennett
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • what is a myectomy

    ive been reading about people who have had myectomys.i have never heard of this and would like to no what it is,and if it could help me .any information on this would be much appreciated
    im 20 years old with hcm and just been told i need a heart transplant

  • #2
    Bennett,

    On our website in the treatment section you can click on "See your options for Septal Reduction Here" and it will bring you to a page from the Cleveland Clinic with a video that will explain what they do for a myectomy.

    Also within the message boards you can do a search of myectomy and read all the postingst that have to do with it.

    If we can be of any further help, just let me know.

    Kelly
    Life is 10% what happens to you and 90% what you do with what happens to you.

    Comment


    • #3
      Bennett, here is a link to the information. You can click the link "click here for a visual" to see more.

      Reenie

      http://www.4hcm.org/treatment/index.php#surgery
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #4
        Search function

        You can also search the message board for posts on myectomies to read about people's questions, experiences, etc.

        The link is in the middle of the red links at the top of the page.

        S

        Comment


        • #5
          Hi again Bennett,
          By all means check out everything you can, but also bear in mind that a myectomy may not be the answer in your particular case. If you check out myectomies and decide that it very well deserves further discussion, please turn to your cardiologist and discuss with him why he thinks transplant is the answer in your case. Just possibly your heart muscle may be too stiff to support a successful myectomy – causing you to face two major operations instead of one.

          Myectomy might just be your answer – but then again it may not. Please be excruciatingly thorough in your investigation – and get as many medical opinions as you can, before you decide which way to jump. It’s a tough go any way you cut it – but if you make sure which is the right way for you personally – then you have the best chance of success – and that’s the bottom line – isn’t it?

          I in no way mean to be a wet blanket, but I want you to be absolutely sure which way is best in your case. I too would like to see you achieve the best result possible.
          Burt

          Comment


          • #6
            Bennett

            Take a pen and paper in with you to your doctors office and have your questions ready for them, i did and it got the ball rolling sort of speaking i was put in the hospital and had several test run including another heart cath, you see i had a myectomy 10 months ago and with them not knowing that my right side was stiff (my ventricle), i'm now going on the transplant list, I had a right and a left sided heart cath and a cat scan of my chest and another Echo with the dobutimine, now i'm told not to do anything that would make me sweat so i don't stress the heart so much, but to tell you the truth i'm sweating just typing this letter to you, i hope things turn out for you and if you need anything just send a PM and i will get right back with you

            Shirley
            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

            Comment

            Today's Birthdays

            Collapse

            Working...
            X