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9 weeks post myectomy


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saphire947 Find out more about saphire947
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  • 9 weeks post myectomy

    Hi everyone,

    Thank you all for all you support and prayers during my recent surgery. My myectomy was a complete sucess, but I ended up back in the hospital four days after discharge with pneumonia and CHF. After 10 days of IV antibiotics and Heparin, I was sent home still on O2 with 10 more days of antibiotics. After a second 10 day course of antibiotics my lungs are finally clear and I feel human again. I am no longer experiencing any of the disabling symptoms I had before the surgery. No SOB, no tachycardia, no discomfort after my evening meal, no fluid retention. I have even lost 15 pounds. I went back to see Dr. Rastegar last month and was taken off of all my meds except Lopressor. My gradient which was about 70 prior to surgery is now 11. Other than some residual fatique, I feel better than I have in years.

    I want to give a special thank you to Pam for all her expert advice prior to my surgery. Because of the time Pam spent sharing her experience, I was able to go into surgery completely relaxed. The team at NEMC was fantastic. While I was being prepped , each person answered my questions. I was given an explanation about how the heart-lung machine would be attached and what to expect when I woke up. After the A-line was inserted and sutured in, they told me it was time to go to sleep. Can you believe the walls in the OR are pink? I was used to the institutional green. A couple of deep breathes and I was waking up in the CICU.
    Pam's advice to ask for plenty of ice chips was great. I hardly had any discomfort from the endo tube.

    Am I glad I had the surgery? Absolutely. Would I recommend it to others? Yes. The quality of my life is so much better, better than I could have ever imagined. Dr Rastegar is a very gifted surgeon. Again, thank you all.


  • #2
    Re: 9 weeks post myectomy

    Wonderful news!!!!



    • #3
      Re: 9 weeks post myectomy


      Good to hear everything is going well. It will be seven months on friday since my myectomy. I can tell you that each day gets better and better. I never thought that I would ever feel this good again. Do what your Dr. tells you to do and get lots and lots of exercise.

      I to am on Lopressor and probably will always be. But it could always be worse.

      Stay in touch and stay on the road to a good recovery...

      " Real Courage Is Being Scared To Death But Saddling-Up Anyway "


      • #4
        Re: 9 weeks post myectomy

        I'm so glad to hear that you're better! I hope that the rest of your recovery is smoother than the last few weeks.


        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.


        • #5
          Re: 9 weeks post myectomy

          Marilyn ,

          You are welcome but no thanks is necessary, I was glad to help. I sent you a pm . Glad you are back posting with us.

          Continue doing well.

          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          Myec[email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


          • #6
            Re: 9 weeks post myectomy


            It only gets better.

            Welcome to the Myectomy Club.

            Cleveland Myectomy Club
            August 31, 2004