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myectomy sch dec 29 cleveland ????

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JOE B Find out more about JOE B
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  • myectomy sch dec 29 cleveland ????

    hi newbe from buffalo ny . sch for myectomy dec 29 dr smedira 50at rest 167with exertion pos valve problems and blocked vesules diag june 30 2004 confored nov 17 cleveland dr thamilarasan ?????in reguard to surgery back ground 41 yo male went down fighting arson house fire at 5:15 am june 30 04 vol firefighter/ hazmat tech 20 +years was safety trainer and inspector for safety company till oct 04 put on stdisb
    Joseph D. Bethge

  • #2
    Re: myectomy sch dec 29 cleveland ????

    Welcome Joseph,

    I had my Myectomy at the Cleveland Clinic on August 31st.
    Dr Lytle & DR Smedira are the top 2 Myecytomy surgeons at CCF. You are in great hands.

    Stuart Schwartz
    Cleveland Myectomy Club
    August 31, 2004

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    • #3
      Re: myectomy sch dec 29 cleveland ????

      Hey, you have quite a story. You're in great hands. Best of luck.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Re: myectomy sch dec 29 cleveland ????

        Hey Joe,

        Had my myectomy in May 04. Dr Tham... is my Doc also. Cleveland is a great place to have your procedure done...


        Tigger1
        " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

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        • #5
          Re: myectomy sch dec 29 cleveland ????

          Hi Joe,

          I'm a newbie to the board too.

          I'm scheduled for myectomy dec 9 or so at Cleveland Clinc also.
          Dr Lever is my doc, and Dr Smedira is the surgeon

          My local cardio only wanted to an ICD, but we went to see Dr. Maron in Minnesota , and he recommended a myectomy..

          I'll keep you updated.. Hopefully I do as a well as Stuart and Tigger

          Take care,
          Edwin

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          • #6
            Re: myectomy sch dec 29 cleveland ????

            Hi Joe,

            I agree with Reenie, you do have quite a story.

            I wish you all the best.

            Hugs -- Eileen
            49 yrs. old
            Diagnosed at 31.
            Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
            First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
            Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
            Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
            My brother passed away suddenly at 34 yrs old from HCM.
            2 teenage children, ages 17 and 15.

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            • #7
              Re: myectomy sch dec 29 cleveland ????

              Hi Joseph.
              If you have any questions about the surgery and recovery, you can PM me (you too Edwin).
              My Myectomy was on 2/18 at New England Medical.
              I'm guessing you are a very determined individual, because you ended up in some of the best hands an HCM patient can be in.
              Fx

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              • #8
                Re: myectomy sch dec 29 cleveland ????

                hi joe nice to know somebody from buff. ny that shares the same problem you will be fine in my case in feb of 01 septal alabation was the new treatment now i wish i had the myectomy but never fear these docs are the very best mine is dr. lever was dr.asher before he went to the fla.location dr.tezcu did my alablation and dr.chung put the pacer in i see them every year and they make the cardios in buffalo or anywhere else years ahead as treatment goes dont have my profile ready yet but you can email me at [email protected] good luck to you

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                • #9
                  Re: myectomy sch dec 29 cleveland ????

                  Joe
                  Good for you, for being so vigilant, you've made a good decision, having a myectomy. There are plenty of us here, as you can see with the myectomy experience, so that can be reassuring. Let us know about any questions & concerns.
                  My prayers are with you.
                  RONNIE

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