If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

I had a question about memory... but i forgot it.

Collapse

About the Author

Collapse

mtlieb Find out more about mtlieb
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • I had a question about memory... but i forgot it.

    Oh, yeah....

    WHAT is the deal with this memory issue after myectomy? This is driving me bonkers. It takes me twice as long to study and comprehend my coursework as it did last semester before surgery, and i'm just wondering when this little phase is going to pass?

    Don't get me wrong... i could not be happier with the outcome of my myectomy and i don't think things could have possibly gone any smoother for me. Compared to previous semesters when i was in CHF and on the decline... this semester things just keep getting better and better as time passes. I'm more active, i participate more, and life has actually become kinda fun for me again. Who'd have thunk it? It really is a miracle and i am so grateful that things have gone as well as they have.

    But as far as the memory issues are concerned, is there anything i can do to get my brain back in shape a bit quicker? Has anyone found that a particular vitamin or mineral supplement has helped in this area? What specifically about a myectomy causes this type of thing to happen anyway? What happens to the brain during open-heart surgery?

    Any insight into this would be greatly appreciated.

    Thanks,

    Jim
    "Some days you're the dog... some days you're the hydrant."

  • #2
    Re: I had a question about memory... but i forgot it.

    Jim

    Doc told it would just take time when i asked him, and he said it could take up to a year to get it back completely sorry buddy

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

    Comment


    • #3
      Re: I had a question about memory... but i forgot it.

      Hey Jim,
      A number of years ago I was told that 1,000 mg of Vitamin C, and 80 units of Vitamin E will help protect your grey cells as you age. A couple of years after that I saw it reported on TV during an IQ Quiz.

      I don’t know if it will do any good, but I don’t believe it will do any harm either. I‘ve been on these vitamins for years – and I can still remember what I had for breakfast. I take two 500 mg of vitamin C – morning and night, and the same with the 400 units each of vitamin E. Why not give it a try? It just might put you on track quicker. Look for the two for one sales at the drug stores, or try Costco.

      Good luck with your studies, and try to catch me with IM on the week-ends if you can.
      Burt

      Comment


      • #4
        Re: I had a question about memory... but i forgot it.

        Sorry Jim,...what was the question again...


        ???
        " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

        Comment


        • #5
          Re: I had a question about memory... but i forgot it.

          Who is Jim?
          Fx

          Comment


          • #6
            Re: I had a question about memory... but i forgot it.

            I thought i knew a Jim once!!!!!!!!!

            Shirley
            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

            Comment


            • #7
              Re: I had a question about memory... but i forgot it.

              Jim
              I think the memory issue, has to do with the Heart-Lung Bypass machine they put you on. Not only has my memory deminished, but I find my thought process has slooooooowed down. Sometimes words just alude me-I was an English Major & I never had this problem B4. Also Beta Blockers have added to my "stupidity" I want my old brain back now!
              RONNIE

              Comment


              • #8
                Re: I had a question about memory... but i forgot it.

                Jim,

                I had memory problems before surgery(just ask my wife!), and after surgery it was a complete mess, I could not get anything to stick and had even problems trying to form a complete sentence. Now just over a year after surgery, I'm back to were I was before surgery. I think I even improved a bit compared to before.

                Hang in there, it will come back, even though it takes a while....
                Fred

                Comment


                • #9
                  Re: I had a question about memory... but i forgot it.

                  Hey folks,
                  I am very confused. On the one hand I have heard a number of people remark that after a myectomy it takes up to a year for your memory to return to its normal functioning, and it’s probably due to the heart/lung bypass machine causing some damage to the red blood cells.

                  On the other hand every three months I have a Glycohemoglobin A1c test to check my average blood/sugar levels. This test is based on the fact that the red blood cells will capture the amount of sugar available when they are formed, and the cells last ninety days, supplying you with the last three month’s average.

                  Therefore, ninety days after a myectomy there should be no red blood cells left in your body that actually went through the bypass machine – so how could it be affecting you for up to a year? There just has to be another explanation.

                  It reminds me of the US Army Military Academy at West Point early in WWII which was teaching, in two succeeding classes, opposite information. The first class was Gunnery in which they were calculating the muzzle velocity of cannon shells at a multiple of the speed of sound, followed immediately by a class in Aeronautics where they were teaching that it was impossible to exceed the speed of sound. Well, we ultimately found out which was right, but back then aeronautics still had quite a way to go. In those days there was a saying that, “Aeronautically speaking it was possible to prove from the shape and size of their wings that bumble bees were incapable of flight – but the bees didn’t know that, and so flew anyway.”

                  So why does it take up to a year for your thought processes to return to normal after a myectomy? Anybody have any legitimate ideas?
                  Burt

                  Comment


                  • #10
                    Re: I had a question about memory... but i forgot it.

                    Jim,

                    This has been what I've been told from a trusted source, but I know we have some medical folks out there that will be sure I am relaying the information correctly. If I am not, I turst they will speak up!!

                    During the course of open heart surgery while we are on the heart lung bypass machine our blood is thinned greatly (to a watery-like consistency) from the heparin we are given. While the blood still has enough oxygen enough to continue to support our brain, tissues, etc. it is not at the normal level that we are accustomed. Or course, it is the oxygen-rich blood which helps our brains to function daily. During open heart surgery our brain is essentially 'put to sleep'. Just as the rest of our body takes a good long while to recuperate, I usually think it's a year, it would stand to reason that our brain does as well. During this time, some patients have forgetfulness, etc.

                    This wonderful surgery, with all of its benefits, impacts us in so many ways other than just the positive outcome. Our bodies have to rid itself of the drugs used, and the 'injuries' it has endured not only 'chemically' and 'physically' but also physiologically. I am constantly amazed by the ability of the human body as well as modern medicine!

                    I hope this is helpful and that my understanding of it is accurate.

                    Lynn
                    Lynn Stewart
                    HOCM 4/2002
                    Cleveland Myectomy Crew 8/2002

                    Comment


                    • #11
                      Re: I had a question about memory... but i forgot it.

                      Sorry Folks,
                      But it sounds like another Trojan Hoarse to me. I may be wrong, but I have never heard of a drug in common use today – especially blood thinners – who’s half life runs for months and whose effective life runs up to a year.

                      Sure, there are vaccines that are supposed to protect you for life, but they accomplish this by building the body’s immune system, not by being at drug effective levels for so long.

                      I’m sure there are more then enough cases to prove that this effect does indeed happen, but I have yet to hear an explanation of why, that I can believe in. There has to be something going on to cause this effect, I just don’t think we have discovered it yet. It is still the practice of medicine. There is much yet to learn.
                      Burt

                      Comment


                      • #12
                        Re: I had a question about memory... but i forgot it.

                        A few thoughts-

                        Long term effect on the brain post open heart is a topic that was discussed this year at AHA - I did not get to that talk but have ordered the tape of the talk. I hope to have it by next week. When I listen to it I will share its content. In short it appears that Lynns posting is basicly correct - the brain suffers some damage that is repaired to some extent with time.

                        I will share this with you regarding brain damage. As some of you know I am a stroke survivor. I have significant amounts of brain damage as a result of the stroke. THANKFULLY the damage was in portions of my brains that were less important than other part! I can say now - 14 years post stroke that 1 month post stroke I said I was fine - but was having a hard time with recall and focus. At 6 months I thought NOW I am better my focus and recall had improved a great deal...HOWEVER it was about 18 months post stroke that I said OK NOW I am REALLY better - and in fact my recall and focus was better than it had ever been!

                        The body is a strange and wonderful thing and we must give it time to heal. Just some thoughts from my damaged little brain

                        Lisa
                        Knowledge is power ... Stay informed!
                        YOU can make a difference - all you have to do is try!

                        Dx age 12 current age 46 and counting!
                        lost: 5 family members to HCM (SCD, Stroke, CHF)
                        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                        Therapy - ICD (implanted 97, 01, 04 and 11, medication
                        Currently not obstructed
                        Complications - unnecessary pacemaker and stroke (unrelated to each other)

                        Comment


                        • #13
                          Re: I had a question about memory... but i forgot it.

                          Now that I can believe. It takes a long time for damaged nerve cells to get repaired – if they ever do – but the brain has some marvelous capabilities to reconnect pathways using new cell connections to replace ones that were previously damaged. In fact, the brain is always building new pathways – that’s called learning.

                          Neurological recovery does take lots of time, and has some ‘interesting’ twists and turns. I had a stroke in 2003 that affected my left leg, my jaw and my taste buds. I thought I had fully recovered - in three to four days. The leg was the last to improve, but by forcing it to work I think I made the necessary reconnections faster. On occasion however, it does seem that my left leg is a bit weaker then my right.

                          When I was discharged from the hospital last month, on October 18th, I was told that I did not have another stroke, but the MRI did show something that should be checked by a neurologist, and a specific doctor, the one my wife sees, was indicated. Instead they sent me to a different neurologist who talked with me for awhile and said he could not help me as I needed a stroke specialist, which he was not. The man specified on my discharge was again indicated – and this neurologist didn’t even charge me for the visit. Well, I again asked my PCP for a referral to this doctor, and so far, that’s as far as it has gone.

                          Since this doctor is no longer a regular insurance doctor, I expect, if the Authorization Request is ever submitted, the referral will be denied and I will have to appeal the denial. That is usually rejected also, but then I will have documentation with which to sue their sorry bottoms if or when I do have another seizure.

                          While I am venting – I now use in a 90 day period nine bottle of the insulin Lantis, and twelve bottles of the insulin Humalog. Well the pharmacy sat on the order until it became critical, saying I needed an Authorization Request for that quantity. My neurologist sent in the special request, and the pharmacy said it will take three days to process and review the request. I got my high risk caseworker involved only to find out that the insurance company has a cap of nine bottles of any type of insulin in a ninety day period.

                          I got the nine bottles yesterday, after much hassling, which included the pharmacy now dropping this package delivery service. I have an appointment with my endocrinologist on Tuesday to try and work out a solution. He is afraid that if he puts me on yet a third insulin he will open himself to a mal-practice charge. He doesn’t like the idea of my cutting back on the amount of insulin I take now because my blood sugar level is still running very high, frequently over 300, and he doesn’t like the idea of putting me on an older, slower acting type of insulin. An alternative would be to give me another drug to make me more sensitive to the insulin, but he has been holding off on that because it has a tendency to make your legs swell – and although much better, I still get a lot of water in my legs.

                          While this has been going on, the cardiologist I was seeing in LA said it’s bad medicine to treat me over the phone, and wants me to get a local man that he can work with. (All attempts to establish a working relationship with the local cardiologist I now have has been ignored.) He recommended a doctor who is the president of the AHA for our county, and I have asked my PCP to issue an Authorization Request for me to be seen by this doctor. As with the neurologist’s request I asked for this request to also be sent to my high risk caseworker, but as of Friday afternoon there has been no action. I would have gone to the hospital this weekend if there was a cardiologist there that I trusted, but that’s another problem.

                          To go to the hospital means that I will be treated by the cardiologist I wrote about before who destroyed the details of my Echo last March after writing a vague evaluation, and said you can get HCM later in life from other causes. Ironically, the doctor I had been seeing in that group, on my last visit said he would not treat me in that hospital as it is the other doc’s turf – and then he made the remarkable observation that there is nothing wrong with my heart anyway. The specialist in LA now agrees that I do indeed have HCM, plus I’ve had four angioplasties, plus coronary artery disease, hypertension and a few assorted other coronary problems – but there’s nothing wrong with my heart. As Lisa would say – Uff Da!

                          Then to round out the package, I’ve been getting a few cramps in my legs, primarily my right calf, which hobbles me for an average of two days each time. I had my potassium checked and it’s normal, but I increased my supplement for a few days anyway. I’m currently on 120 mg of Lasix and 50 mg of Aldactone, and dropping pounds a little at a time.

                          Well, aside from some personal issues, and the fact that my son now has HCM, hypertension, diabetes and asthma, and was hospitalized two weeks ago with a BP of 220/140 and a pulse rate over 100, (after being treated with nitro) – I guess that’s all that’s been going on around here. I must admit I’ve been a bit down of late, but am now looking forward to seeing what else can get screwed up. I’d start to laugh, but I’m afraid I might never stop. (Darling Lisa, you are so right. Catharsis is good for the soul.)
                          Burt

                          Comment


                          • #14
                            Re: I had a question about memory... but i forgot it.

                            Thanks for the very helpful and informative replies!

                            Burton, unless i'm mistaken i don't believe anyone is suggesting that it takes a year for the body to rid itself of the drugs, or to replace red blood cells. I believe that it is the effect of these things on the brain during open-heart surgery that is the culprit here. The damaged brain cells are what can take up to a year to repair and get back to normal operation. If i have interpreted Lynn's response correctly.

                            I guess it's enough just to know that many of you are in the same boat here. Hopefully i'll get my gray-matter back soon. I didn't really have much to spare to begin with.

                            Jim
                            "Some days you're the dog... some days you're the hydrant."

                            Comment


                            • #15
                              Re: I had a question about memory... but i forgot it.

                              OK Jim,
                              So really – what was the question again?

                              I think I thunked, but I guess I thunked wrong.

                              Weren’t we supposed to take a left in Omaha?

                              I guess that’s why I’m having trouble with my CELL phone.

                              I’m sorry, I have to go back to my CELL now - and fluff the walls.

                              Out of my mind - back in five minutes.

                              See you in the punny papers.

                              Burt

                              Comment

                              Today's Birthdays

                              Collapse

                              Working...
                              X