If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Advice regarding Cleveland Clinic

Collapse

About the Author

Collapse

Ronnie
Ronnie
Major Contributor
Find out more about Ronnie
X
 
  • Filter
  • Time
  • Show
Clear All
new posts
    mtlieb
    Brave Heart

  • mtlieb
    replied
    Re: Advice regarding Cleveland Clinic

    Hi Ronnie,

    Just wondering if you've had the procedure done yet and how everything went in Cleveland. Be sure to fill us in when you get back and feel like posting.

    Jim

    Leave a comment:

  • Ronnie
    Major Contributor

  • Ronnie
    replied
    Re: Advice regarding Cleveland Clinic

    Thanks everyone for your input. I feel very positive about haveinvg my proceedure done at Cleveland. I've done research on the Doc & he seems to be the specialist I need now. I just wish it would all end & I could be more pain free, with fewer limitations!

    Leave a comment:

  • mtlieb
    Brave Heart

  • mtlieb
    replied
    Re: Advice regarding Cleveland Clinic

    Ronnie,

    The Cleveland Clinic Guesthouse is always my first choice as well. It's a very short walk across the street to the Heart Center, and all things considered (free parking, shuttle, etc.) it's the most affordable choice close to the clinic. You should receive materials regarding making reservations there when you receive your information packet. (Make sure you tell them you're a patient to receive the better rate.) There are small refrigerators in the rooms, and if you ask in advance, they can put a microwave in there for you as well if any are available.

    Hope you have a great visit with the docs in Cleveland.

    Jim

    Leave a comment:

  • Tigger1
    Barely Heart

  • Tigger1
    replied
    Re: Advice regarding Cleveland Clinic

    Ronnie,

    I had a myectomy done in Cleveland back in May 04. My Wife, Sister-in-law and good friend all stayed at the Guest House. It worked out fine staying there. Plenty of places to eat. Two restaurants right behind the Guest House.

    The Cleveland Clinic was great in my opinion. I was there for two weeks. The staff was fantastic. Cleveland would always be my first choice to go.


    Tigger1

    Leave a comment:

  • mark720
    Ventricle

  • mark720
    replied
    Re: Advice regarding Cleveland Clinic

    very easy to get around at the guest house almost across the street is the heart center shuttle service from the clinic runs back and forth every 10min. go to little italy if you get the chance its up the road on eculid ave. and make a right after the collage cant remember the name of the street but its great and easy to get around if your a out of towner like i was good luck

    Leave a comment:

  • Pam Alexson
    Moderator

  • Pam Alexson
    replied
    Re: Advice regarding Cleveland Clinic

    Ronnie,

    I have no familiarity with the geography but I did want to wish you well and good luck . We will all be waiting to hear from you. You have had a lot to overcome and I admire your fortitude.

    Pam

    Leave a comment:

  • Laoshur
    Member of 1000 Post Club!

  • Laoshur
    replied
    Re: Advice regarding Cleveland Clinic

    I have also been subjected to an interventional radiologist, but to block arteries that you guys lack!

    All I have to say was that that guy had no bedside manner and no compassion, or at least it looked that way to me and my family. But he got the job done.

    Rhoda

    Leave a comment:

  • Burton Borrok
    Dearly Departed

  • Burton Borrok
    replied
    Re: Advice regarding Cleveland Clinic

    Hi Ronnie,
    We are all doing fine – just waiting around to hear how well your cath goes. Frankly, I also was a little taken aback when I first heard that my caths were going to be done by an interventional radiologist, but I have seen the light. That’s all these guys do, and they get to do it exceptionally well.

    Now I get to look forward to spring also. We had a great time and are looking forward to a repeat performance. Let us all hear how well your procedure goes.
    Burt

    Leave a comment:

  • Ronnie
    Major Contributor

  • Ronnie
    replied
    Re: Advice regarding Cleveland Clinic

    Burt-

    Thanks for helping me feel more comfortable about my trip to Cleveland. I would have preferred to stay home for, what seems so minor as Angio w/stent, but they say they can't do it here & don't know what to do!
    I would LOVE to recup in Vegas, but that won't be possible. We're having a Baby, on Thurs (my daughter) & my son & his family will be here for Chanukah. I'm still planning to spend January in Florida, so Vegas gets moved to Spring.
    Give my Love to Shirley & take good care of yourself. How is your Son doing?
    RONNIE

    Leave a comment:

  • Burton Borrok
    Dearly Departed

  • Burton Borrok
    replied
    Re: Advice regarding Cleveland Clinic

    Hi Ronnie,
    In 2003 I had an interventional radiologist do my renal arteries and a month later, my iliac arteries. These guys are skilled in doing caths, and know exactly what is going on with the use of their monitoring equipment. They are my specialty of choice when it comes to caths - unless the cardio has done it daily for years. A highly unlikely situation.
    I was amazed at how quickly and efficiently my radiologist worked – and he did an A #1 job too. You’ll be fixed up just fine.

    Have you considered coming back to Las Vegas to complete your recovery? We still have a lot of places we haven’t hit, and we both would love to see you again.
    Burt (and Shirley)

    Leave a comment:

  • patkir
    Shy Heart

  • patkir
    replied
    Re: Advice regarding Cleveland Clinic

    Ronnie,
    I would stay at the Cleveland Clinic Guest House. It is about a block or so from the heart center. It runs about 100 a night which is relatively cheap. There are a lot of places to eat in the hospital and there is a deli attached to the the Guest House. Good luck. You will be in the best of hands. I am constantly amazed by the improvement in my symptoms. The care is the best. I can't say enough good things about the hospital.

    Leave a comment:

  • Ronnie
    Major Contributor

  • Ronnie
    started a topic Advice regarding Cleveland Clinic

    Advice regarding Cleveland Clinic

    I will be heading to Cleveland, in a few weeks & would like input about Hotels, Restaurants, driving around. My Myectomy (7/03, was @ Mayo), so I am unfamiliar with Cleveland & how things are organized. Since my Myectomy, scar tissue has blocked 2 arteries (necissitating a Bypass (April 2004) & now I have another blockage requiring angioplasty & stenting, but my Cardio says they cannot fix it here, as it's complicated & they have "never seen a blockage, like this", so after my last Cath, they rolled me out without fixing it. I have an appointment with a Dr. Whitlow, who is an Interventional Cardiologist & is willing to perform the proceedure. Cleveland has worked me into his schedule so that I can have all prior testing & meet with the Doc on day 1, have the proceedure on day 2, spend the night in the hospital day 2 & return home day 3.
    This is much less drastic & invasive compared to a Myectomy! I'm almost looking forward to this!
    Any tips anyone would like to share would be appreciated.

Today's Birthdays

Collapse

Working...
X