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Advice regarding Cleveland Clinic

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Ronnie Find out more about Ronnie
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  • Advice regarding Cleveland Clinic

    I will be heading to Cleveland, in a few weeks & would like input about Hotels, Restaurants, driving around. My Myectomy (7/03, was @ Mayo), so I am unfamiliar with Cleveland & how things are organized. Since my Myectomy, scar tissue has blocked 2 arteries (necissitating a Bypass (April 2004) & now I have another blockage requiring angioplasty & stenting, but my Cardio says they cannot fix it here, as it's complicated & they have "never seen a blockage, like this", so after my last Cath, they rolled me out without fixing it. I have an appointment with a Dr. Whitlow, who is an Interventional Cardiologist & is willing to perform the proceedure. Cleveland has worked me into his schedule so that I can have all prior testing & meet with the Doc on day 1, have the proceedure on day 2, spend the night in the hospital day 2 & return home day 3.
    This is much less drastic & invasive compared to a Myectomy! I'm almost looking forward to this!
    Any tips anyone would like to share would be appreciated.
    RONNIE

  • #2
    Re: Advice regarding Cleveland Clinic

    Ronnie,
    I would stay at the Cleveland Clinic Guest House. It is about a block or so from the heart center. It runs about 100 a night which is relatively cheap. There are a lot of places to eat in the hospital and there is a deli attached to the the Guest House. Good luck. You will be in the best of hands. I am constantly amazed by the improvement in my symptoms. The care is the best. I can't say enough good things about the hospital.

    Comment


    • #3
      Re: Advice regarding Cleveland Clinic

      Hi Ronnie,
      In 2003 I had an interventional radiologist do my renal arteries and a month later, my iliac arteries. These guys are skilled in doing caths, and know exactly what is going on with the use of their monitoring equipment. They are my specialty of choice when it comes to caths - unless the cardio has done it daily for years. A highly unlikely situation.
      I was amazed at how quickly and efficiently my radiologist worked – and he did an A #1 job too. You’ll be fixed up just fine.

      Have you considered coming back to Las Vegas to complete your recovery? We still have a lot of places we haven’t hit, and we both would love to see you again.
      Burt (and Shirley)

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      • #4
        Re: Advice regarding Cleveland Clinic

        Burt-

        Thanks for helping me feel more comfortable about my trip to Cleveland. I would have preferred to stay home for, what seems so minor as Angio w/stent, but they say they can't do it here & don't know what to do!
        I would LOVE to recup in Vegas, but that won't be possible. We're having a Baby, on Thurs (my daughter) & my son & his family will be here for Chanukah. I'm still planning to spend January in Florida, so Vegas gets moved to Spring.
        Give my Love to Shirley & take good care of yourself. How is your Son doing?
        RONNIE
        RONNIE

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        • #5
          Re: Advice regarding Cleveland Clinic

          Hi Ronnie,
          We are all doing fine – just waiting around to hear how well your cath goes. Frankly, I also was a little taken aback when I first heard that my caths were going to be done by an interventional radiologist, but I have seen the light. That’s all these guys do, and they get to do it exceptionally well.

          Now I get to look forward to spring also. We had a great time and are looking forward to a repeat performance. Let us all hear how well your procedure goes.
          Burt

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          • #6
            Re: Advice regarding Cleveland Clinic

            I have also been subjected to an interventional radiologist, but to block arteries that you guys lack!

            All I have to say was that that guy had no bedside manner and no compassion, or at least it looked that way to me and my family. But he got the job done.

            Rhoda

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            • #7
              Re: Advice regarding Cleveland Clinic

              Ronnie,

              I have no familiarity with the geography but I did want to wish you well and good luck . We will all be waiting to hear from you. You have had a lot to overcome and I admire your fortitude.

              Pam
              Dx @ 47 with HOCM & HF:11/00
              Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
              Lead failure,replaced 12/06.
              SF lead recall:07,extracted leads and new device 2012
              [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
              Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
              Genetic mutation 4/09, mother(d), brother, son, gene+
              Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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              • #8
                Re: Advice regarding Cleveland Clinic

                very easy to get around at the guest house almost across the street is the heart center shuttle service from the clinic runs back and forth every 10min. go to little italy if you get the chance its up the road on eculid ave. and make a right after the collage cant remember the name of the street but its great and easy to get around if your a out of towner like i was good luck

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                • #9
                  Re: Advice regarding Cleveland Clinic

                  Ronnie,

                  I had a myectomy done in Cleveland back in May 04. My Wife, Sister-in-law and good friend all stayed at the Guest House. It worked out fine staying there. Plenty of places to eat. Two restaurants right behind the Guest House.

                  The Cleveland Clinic was great in my opinion. I was there for two weeks. The staff was fantastic. Cleveland would always be my first choice to go.


                  Tigger1
                  " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

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                  • #10
                    Re: Advice regarding Cleveland Clinic

                    Ronnie,

                    The Cleveland Clinic Guesthouse is always my first choice as well. It's a very short walk across the street to the Heart Center, and all things considered (free parking, shuttle, etc.) it's the most affordable choice close to the clinic. You should receive materials regarding making reservations there when you receive your information packet. (Make sure you tell them you're a patient to receive the better rate.) There are small refrigerators in the rooms, and if you ask in advance, they can put a microwave in there for you as well if any are available.

                    Hope you have a great visit with the docs in Cleveland.

                    Jim
                    "Some days you're the dog... some days you're the hydrant."

                    Comment


                    • #11
                      Re: Advice regarding Cleveland Clinic

                      Thanks everyone for your input. I feel very positive about haveinvg my proceedure done at Cleveland. I've done research on the Doc & he seems to be the specialist I need now. I just wish it would all end & I could be more pain free, with fewer limitations!
                      RONNIE

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                      • #12
                        Re: Advice regarding Cleveland Clinic

                        Hi Ronnie,

                        Just wondering if you've had the procedure done yet and how everything went in Cleveland. Be sure to fill us in when you get back and feel like posting.

                        Jim
                        "Some days you're the dog... some days you're the hydrant."

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                        • #13
                          Re: Advice regarding Cleveland Clinic

                          I am leaving for Cleveland 12/8-my proceedure is scheduled for 12/10. I'm seeing Dr Patrick Whitlow, who is doing the proceedure. He's not an HCM specialist, he's an Interventional cardiologist., but I know there's a HCM specialist nearby. I will definitely post when I come home & give everyone an update. I know he can & will fix my current blockage & I'll finally be pain-free, because the chest pains are so very bad sometimes & they are nonexerctionable, so it's just out of control!
                          RONNIE

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                          • #14
                            Re: Advice regarding Cleveland Clinic

                            Ronnie, I wish you the best. Dec 8 may seem like a long way off, but it will be here before you know it! Linda

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                            • #15
                              Re: Advice regarding Cleveland Clinic

                              Ronnie,

                              We will be thinking about you as you head off to Cleveland.
                              Our thoughts & prayers travel with you.

                              Wishing you the best,
                              Stuart
                              Cleveland Myectomy Club
                              August 31, 2004

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