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Just returned home from Cleveland - 9 week check up

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Stuart Schwartz Find out more about Stuart Schwartz
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  • Just returned home from Cleveland - 9 week check up

    I saw Dr Lever yesterday.
    It was my 9 week post Myectomy check up.

    All is still great.

    I have had a very easy recovery & I know I'm very lucky.
    I feel it is important to post this to let others know (who may need to have a procedure) that there are as many people that do have easy recoverys as those that have some complications. We only hear of the tough ones, but I have spoken to many that have had as easy a time as myself.

    Barbara & I could not have gone through this without your support. I don't know what tomorrow will bring, but it is good to know you are all there.

    My thoughts, prayers & thanks go out to all.

    Stuart Schwartz
    Cleveland Myectomy Club
    August 31, 2004

  • #2
    Re: Just returned home from Cleveland - 9 week check up

    Stuart, you are so right about the different recovery periods, and not just for myectomy. Everyone goes into a procedure at a different level of health, and that affects the recovery. It's so nice to see someone pop in every 6 months or so to give a progress report. If they are only visiting that often, they are probably doing pretty well and still remembering and giving back to those who were so supportive and helpful during the time they spent researching and learning here.

    I continue to be amazed at how this message board has grown and what it has become. Lisa started something that everyone else has contributed to, to make it a tremendous success. We'll never know for sure just how many people have been helped throughout the world. I especially value the help and cooperation of so many when one person (be it moderator or frequent poster) needs a little time off. Someone else just jumps in and helps out. Thanks to all. Linda

    Comment


    • #3
      Re: Just returned home from Cleveland - 9 week check up

      Stuart - I also want to congratulate you on your recovery. I'm so happy for you and hope things continue to go well for you and your family. Linda

      Comment


      • #4
        Re: Just returned home from Cleveland - 9 week check up

        Stuart,
        I am very happy that all is going well for you. I want you to be happy about this - I can not help but note an apology tone in your posting like 'sorry I did great and maybe you will not be as lucky'...
        STUART CONGRATUATIONS and SHARE YOUR secrets to what made YOUR procedure so successful. We know sometimes 'ya just get lucky' and that is great - but lets help more people do everything in their power to 'get lucky' too!

        Take care,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment


        • #5
          Re: Just returned home from Cleveland - 9 week check up

          Lisa,

          I don’t think I imply that “maybe you will not be as lucky” & I’m sorry you read that into it. Simply that many others have had as easy a time as I did and that we don’t hear enough from them - but they are out there.

          And yes, there is a little guilt feeling when I post that I am doing so well and I read of the difficulties others are having.

          Stuart

          PS: I don’t know the reason I am doing so well.
          Cleveland Myectomy Club
          August 31, 2004

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          • #6
            Re: Just returned home from Cleveland - 9 week check up

            Suart

            I convinced i would not be here right now posting this if i didn't have the myectomy, as bad as i was feeling

            Please don't feel bad that you feeling so good it is just that some of us go a little further and advance to the transplant stage

            Don't get me wrong i would be crazy to not be scared now that the doc yesterday said it may be a heart lung transplant if they can't get my left lung back into shape

            Hooray for you Stuart keep up the great recovery, it makes me feel good that it is possible

            Shirley
            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

            Comment


            • #7
              Re: Just returned home from Cleveland - 9 week check up

              Stuart,

              Please do not feel guilty or apologetic. Many of us have not had myectomies and need hope that there is a way to feel better and return to a more normal life. Actually, your post could not have come on a better day for me. I just completed a harrowing experience of getting caught on top of a hill after the last ski lift went down. I thought I could surely climb down having ridden to the top. But I was wrong. I had to stop after nearly every step and we are talking a LOT of steps (1500 feet worth) because of chest pain and weakness. By the bottom I could not even stand still without holding onto something to remain upright. This is something I could have done a year ago as long as it was downhill. So, your myectomy success gives me hope when I feel a little like crying in despair. Thank you!

              Shirley, I am so sorry that you have had more bad news. We will keep praying.

              Rhoda

              Comment


              • #8
                Re: Just returned home from Cleveland - 9 week check up



                Stuart..my point is BE HAPPY because you deserve it!!



                To the rest of the readers,.., my message is "you too can be lucky ..but sometimes there are bumps in the road - stay strong and stay positive!"
                _yrbg


                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment


                • #9
                  Re: Just returned home from Cleveland - 9 week check up

                  Gee Lisa...maybe he really didn't deserve such an easy time.

                  Stuart, I remember getting that first phone call from you while I was driving home one day. That led to the next 90 minutes on the phone with you. And that was the beginning of many people talking you out of a very unnecessary Alcohol Ablation.
                  I am so glad things went this well for you. See you in June.
                  Fx

                  Comment


                  • #10
                    Re: Just returned home from Cleveland - 9 week check up

                    Stuart,

                    Good to hear the news. I go on Nov 23 for my six month check-up. I too was one of the lucky ones who had surgery and recovered quickly without any problems.

                    Keep up the good recovery...


                    Tigger1
                    " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

                    Comment


                    • #11
                      Re: Just returned home from Cleveland - 9 week check up

                      Hi Stuart,

                      Glad to hear you had a great check-up!

                      Everyone recovers from surgery at their own rate of course, but i also count myself as one of the very fortunate to have had a smooth and relatively incident-free recovery. Heck, my biggest issues to date have been fighting with the rehab folks, a few minor skin problems, and trying to remember to wear my shorts underneath my pants and not over top. LoL.

                      (Oh, when will my mind come back?)

                      It's really a joy to read your posts, knowing that not so long ago you were heading for an alcohol ablation which turned out to not be the best choice for you. But you got onto the right track to Cleveland and into very capable hands. We all couldn't be happier for you.

                      Best of luck to you my friend,

                      Jim
                      "Some days you're the dog... some days you're the hydrant."

                      Comment


                      • #12
                        Re: Just returned home from Cleveland - 9 week check up

                        Stuart,

                        Glad to hear all is well with you . Keep on going and doing great. You are amazing!

                        Pam
                        Dx @ 47 with HOCM & HF:11/00
                        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                        Lead failure,replaced 12/06.
                        SF lead recall:07,extracted leads and new device 2012
                        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                        Genetic mutation 4/09, mother(d), brother, son, gene+
                        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                        Comment


                        • #13
                          Re: Just returned home from Cleveland - 9 week check up

                          I had my Myectomy & valve replacement almost 3 months ago. The first few weeks were not a lot of fun but I am beginning to feel good. I had my surgery in Lubbock, Texas. at the one year old Heart Hospital. Dr. Shoukfeh is my heart Dr. but Dr. Burt Fowler did my surgery. I learned I had ths problem about ten years ago. I have a pacemaker, 2 stents & have had a light heart attack. So it was surgery for me. I am 75 years old. The heart hospital is wonderful, the care is super. Today I went for my checkup and Dr. Shoukfeh told me to come back in 6 months. My echo showed no graduient an he couls not hear a murmer.

                          Rilda Moore----Lubbock, Texas

                          Comment


                          • #14
                            Re: Just returned home from Cleveland - 9 week check up

                            Congratulations, Rilda!

                            Thanks for letting us know. Also thanks for giving Burt a run for his money!

                            Rhoda

                            Comment


                            • #15
                              Re: Just returned home from Cleveland - 9 week check up

                              OK ladies,
                              I’m seventy-two, - but I still got a long way to go. The way I figure it, my insurance company has to keep me alive for at least the next hundred years, just to recoup their investment in me so far, and I keep running up the bill. I just might be around for another two hundred years or so, before they can finally break even.

                              Don’t forget, I will probably soon be on dialysis, which is three days a week, four hours a session. Now that has to cost them some bucks – and in fact may lead down the road to a transplant. By the time I’m dune I just might outlast Methuselah – and he was around for eight hundred years. Of course by that time they will probably be doing brain transplants, and I’ll wind up with the body of a young god! Waa Hoo! Look out girls. (I still chase ‘em – I’ve just forgotten why.)
                              Burt

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