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mtlieb Find out more about mtlieb
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  • sandylevitt
    replied
    Re: Thank You!

    Jim,

    trust me I know what those gestures are like. When felix woke up
    I could just tell what he really wanted to say just by looking at his face.

    Glad to see that you have a good appetite. I am sure that will help
    you recover. Are you sticking to the low sodium part? I know that
    was very hard on felix , as he likes prepared and prepackaged foods
    when he is not feeling good and they all have sodium in it.

    you probably are still taking naps in the middle of the day. I remember
    that felix had to nap for about a month or more.

    and we excuse you for any mind fog

    sandy

    Leave a comment:


  • Burton Borrok
    replied
    Re: Thank You!

    Sorry Jim,
    I have dibs on the Heart Cath from **** – the end of May 2003. It ran for six hours over two days. They had to stop after three hours on day one because of my kidneys, and at the end of day two I had pneumonia, my blood pressure was 70/40, my kidneys almost failed, and they had damaged the artery putting in the stent and had to place a second stent over the damage.

    I was released one afternoon a few days later – too soon – and was back the next morning. Three days later I was again released too soon. I went home, and the next day passed out a few times and finally took a nap on the kitchen floor because I would pass out when I tried to get up. That was Sunday. Tuesday morning I woke up with a stroke (only lasted three days), went for a fasting blood test, and then passed out again on the sidewalk of the restaurant we went to for breakfast.

    The next day I went to my PCP appointment. He took one look, put me on oxygen and called the paramedics to take me to a different hospital. I was there for three days where they ran a bunch of tests, also confirming that I had a stroke. After that I was transferred on a gurney in a truck with no shocks, to an after-care facility. After two days there I was finally released – but by then this whole mess had lasted two weeks.

    Interesting side issue. When I got out of the lab on day two I was taken directly to my room – no stop in recovery. When I got there nurse Crotchet was there to ‘help’. As she was administering to me I wanted to scratch my nose which itched. She immediately grabbed my wrist and held my hand away. I couldn’t talk because the pneumonia had my mouth and throat so dry everything was stuck together, and swallowing was about equal to getting stuck with a sward. Well, the incisions were in my femoral arteries (both sides), so I could see no reason to keep me from scratching my nose. The second time I tried it the nurse not only stopped me, she put both my arms and legs in restraints. Well, I’m both deceptively strong, and know how those things work, so when she finally left, I tore my arm loose, gave my nose a nice long scratch, reset the restraint, and took a nap. When I woke up the shift had changed and the new nurse couldn’t figure out why I was ever put in restraints.

    They had used coated stents for the heart cath, and when I saw my cardio a few days later he had a fit because I wasn’t given a prescription for a drug (Plavix) to protect me from getting a massive blood clot / coronary. That was just before the stroke. Ah well . . .

    By the way, that December when I was not yet diagnosed, but was having an HOCM attack, they did another angiogram on me. That’s the same thing minus the balloon and the stents. (Don’t forget I was also angioplastied in July for my renal arteries and again in August for my iliac arteries.) I guess they just like to abuse my kidneys.

    Any other challenges to my claiming the Heart Cath from **** trophy? Honesty, I really don’t want it, - but I wouldn’t wish it on anybody either.
    Burt

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  • Abbygirl2
    replied
    Re: Thank You!

    What doesn't kill you makes you stronger. Thats what my father always tells me. Hopefully through all those bumps (and some very big bumps they were), you can now get better and move on. I have had a Dr I wanted to flip off but being so shy, I just cursed her to ****, under my breath. It wasn't quite as satisfying. Although I guess you should never piss off the people who have your life in their hands.

    Here's hoping for all smooth roads from here on out!!

    Take care,
    Pam

    Leave a comment:


  • Abbygirl2
    replied
    Re: Thank You!

    Glad to hear all went well, your such an inspiration!! Take care of yourself, we missed you!!

    Pam

    Leave a comment:


  • mtlieb
    replied
    Re: Thank You!

    Thanks guys,

    You folks are very cool to be so supportive... but i wouldn't be so quick to pat me on the back for being such a 'trouper'. You weren't around to see the little tantrum i through in the ICU when i found out they had to leave the breathing tubes in for a lot longer than originally planned, or the certain little hand gesture i gave to the ICU nurse when she told me to 'just lay back down and keep quiet'. LoL.

    I've also neglected to tell you about the heart cath from ****, which had some painful complications both during and after the procedure, and landed me in the ER five days later at 1:30am on the morning of my myectomy, just 3.5 hours before i was supposed to report for surgery. Talk about tired and cranky! I was ready to walk away from the whole darned thing that morning

    But these are all things that just plain happen, and i'm pretty sure i'm not the first patient with tubes down his throat to flip off an ICU nurse. (I did apologize profusely once the tubes were out, and we all had a good laugh about it. She became one of my 'buddies' later on during my stay.)

    Pat and Pam: Recovery times are so variable, and there could certainly be some rough waters ahead for me. For all i know there's a nice big clot headed to my lungs or brain even as we speak, i could go into A-Fib at any moment, or the fluid issues could get much worse. I'm just trying to be as positive as i can be for right now

    Shirley: Now that you've expressed your desire to see the folks at the Cleveland Clinic, i'd like to do anything i can to help you get there, even if it means coming down there and picking you up myself and taking you to Cleveland. It could be a whole Thelma and Louise thing! Except, if you don't mind, perhaps we could avoid the whole 'driving over the cliff thing' at the end?

    Take care all,

    Jim

    Leave a comment:


  • Reenie
    replied
    Re: Thank You!

    I'm glad you're so mobile! Take it easy and keep up the good work.

    Reenie

    Leave a comment:


  • swinand
    replied
    Re: Thank You!

    Hi Jim, I am amazed at how quickly you have come back from surgery. I also echo the sentiments of others to not overdo. You might feel good today, but be paitient and make sure you are capable or sustaining this level of activity. I agree that living alone pretty much forces you to do things you might otherwise not do if you have live in support. You are doing wonderfully and I wish you continued progress in your recovery. I, like you, hope your fluid issue will subside and you will be in fighting trim ready to take on the world again. Take care, Steve

    Leave a comment:


  • Pam Alexson
    replied
    Re: Thank You!

    Jim . so happy to hear how great you have done . There are some of us who certainly wish we did as well. I can't believe you went to the market. Just be carefull , please, you do not need any set backs. You are amazing and such a marathoner. All you have gone through has prepared you well for this journey. Keep on doing well and you are in my thoughts. Pam

    Leave a comment:


  • shirleymahoney
    replied
    Re: Thank You!

    Jim

    I wanted to drop you a few words of wisdom , even though you feel like it don't over do it get your exercise but when you feel tired stop and rest, i pushed mself a few times and payed for it dearly he next day, not even wanting to get out of bed or rather the recliner, i did very good in the hospital they said i scared them a few times the way i would just jump up out of bed but most cardiac nurses are use to taking care of people alot older than we are, and they were amazed how fast i got up and around, i was walking the entire floor before i went home 4 or 5 times a day, i 'm keeping my fingers crossed for you for a better way of life than i've had from the surgery, which you will you had no breathing problems like i did and still do if i don't wear my oxygen at night i can't hardly move in the morning when i wake up, i know it doesn't make sence but , i 've tried a couple of times and it's the same thing, but this doctor i seen for my lungs said he thinks it's mainly my CHF so he reccommended me see a heart failure specialist, he say s if i hear anything in your lungs it is a tiny bit of Emphazema in my lower left lung but not enough to cause this oxygen problem, and no more walking because i swell so bad and that is another reason he say it's CHF so i guess to satisfy all concerned i will see a CHF specialist, but you take care of yourself you got it, and make sure you don't dehydrate yourself

    Shirley

    Leave a comment:


  • Tigger1
    replied
    Re: Thank You!

    Jim...You sound great. I wish my recovery was going as well as yours. I will get by as soon as the rash I have is gone. Keep up the good work on your recovery. I still say Cleveland Clinic is the best.

    Going to see the Reds play a ballgame tonight. That's a plus for me.

    Take care...

    Patrick Ekardt
    (Tigger1)

    Leave a comment:


  • Lisa Salberg
    replied
    Re: Thank You!

    Jim,

    You have done so well so far and I am thrilled for you!! It has not always been an easy road for you, but I see some light at the end of this tunnel!

    Be well - take care of yourself and stay in touch!

    Lisa

    Leave a comment:


  • Laoshur
    replied
    Re: Thank You!

    Wow, Jim!!! That is wonderfully incredible! Thanks so much for sharing your experience with us so positively.

    We will all be eager to keep up with your updates.

    Rhoda

    Leave a comment:


  • Glen Beamish
    replied
    Re: Thank You!

    Jim, It's really good to here from you, sounds like everything is going in the right direction, keep up the good recovery.
    Good Luck and Stay Well.

    Leave a comment:


  • Largehearted
    replied
    Re: Thank You!

    Jim. You inspire me! With your attitude you couldn't help but keep improving.

    Peace,

    Leon

    Leave a comment:


  • SharonBates
    replied
    Re: Thank You!

    Hi Jim,
    You can be as long winded as you like...you have earned it! Congratulations on your surgery, your recovery and your enthusiasm. It's wonderful to hear from you and know you are in great hands at the Cleveland Clinic, Dr. Lever, and all the great staff helping you through this giant step!

    Thanks to all our board members that have been cheering you on and helping ease you through this bumpy road at times!

    Can't wait to hear from you soon!
    Best Wishes for a speedy recovery and more warm wishes from AZ to the east coast!
    Sharon

    Leave a comment:

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