If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you
If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Hey Jim, glad to see you back on the board. We've all been rooting for you. Things must be going pretty good, you haven't lost your sense of humor..yet. I've heard you really can't tell how bad you were feeling until you feel better, but then again.. You sounded pretty bad before myectomy so that' not the case I'm sure. Keep up the positive attitude and you'll be back to chasing extra terrestrials in no time. Take care and keep us posted. Steve.
I have a hard time figuring out when things were posted over there with the the 12 hour time zone difference, but it looks to me like it's been more than 24 hours since we last heard from you. I hope that does not mean that you are feeling worse. Please let us know how you are doing, if you feel able.
You are correct Rhoda Jim is a little over an hour past his 24 hour ago post. Jim what's going on ? I hope you are just catching up or busy walking and resting. Heck maybe they kicked him out of the hospital he was doing so good . Let's hope that is what happened. He is heading into his 5th day post -op. I think most of us aimed for 5. Complications kept me there 7. So here is hoping Jim is making the trek home , to his sweet home. Pam
Dx @ 47 with HOCM & HF:11/00
Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
Lead failure,replaced 12/06.
SF lead recall:07,extracted leads and new device 2012 [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
Genetic mutation 4/09, mother(d), brother, son, gene+
Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin
There's just the one old computer here on the floor, and it is always busy, so some nights i just don't get to post to you all like i wish i could. I am still doing great... in fact i was scolded by one nurse yesterday for being 'on the go' a little too much. The nurses can never find me when they want me. LoL. They would normally want to release me tomorrow (day five), but since i am a 'live alone' case, i think i might get an extra day or two just to be safe. I would actually much prefer that myself, rather than take any chances of being back in here anytime soon.
Take care all,
Jim
"Some days you're the dog... some days you're the hydrant."
Jim , Iam glad you got on . You were awol there and had a few of us scratching our heads . Where do you hide from the nurses? You had me laughing about getting scolded by a nurrse. My 76 year old roomate and I were scolded too and told we were to go to bed and she stood there giving us a breath in breath out yoga lesson! We giggled when she left because she had done nothing to help us get ready for bed . So we could not settle in. I got all twisted up in my lines and had to disconnect my telemetry to get my Johnny back on she caught me when another nurse who was very nice and not a nurse Crathett was helping me, because all the alarms were sounding .My roomie had had her gall bladder out, next day had a heart attack and the next day had quadrupple bi-pass. I had had my myectomy was in a-fib and on an amiodorone drip awaiting cardioversion. We were just happy to be breathing and by no means hooping it up. This nurse was just the exception and I think she was just having a bad night. Keep
doing well buddy. Pam
Dx @ 47 with HOCM & HF:11/00
Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
Lead failure,replaced 12/06.
SF lead recall:07,extracted leads and new device 2012 [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
Genetic mutation 4/09, mother(d), brother, son, gene+
Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin
Ok now lets get out of there, i can understand them wanting u to stay because of living alone, who is taking you home? I know you're a grown man but i hope you have someone taking you home, and make sure you get out from time to time to walk and stretch your legs i only live 2 hours away from where i had surgery and my hubby stopped twice, i know it looked funny i went home in a duster, or what my mother would call a moo moo, don't laugh too much cause it does hurt
Shirley
Diagnosed 2003
Myectomy 2-23-2004
Husband: Ken
Son: John diagnosed 2004
Daughter: Janet (free of HCM)
Great news Jim. Glad to here your going home soon. It Will be 4 weeks for me on Monday. Because of a-fib they kept me 10 days. I was on G 101-06 and my nurses were great. I had a 5 hour trip home. They stopped 5 times for me to get out. Have you had that first sneeze yet. That will put you into the twi-light zone. Good luck and keep us posted...
Patrick Ekardt
(Tigger1)
" Real Courage Is Being Scared To Death But Saddling-Up Anyway "
Just talked to Jim he seemed in really good spirits. His nurses seem to think he's overdoing it a little bit. Typical for us HCMers right . He is taking it easy today and trying to get a little shut eye. He is also craving Pizza Hut! It is so great to see him getting the treatment he deserves!
we will try to give jim a call today. our home computer is down
(earthlink ARGGGGG and dont know when it will be up, so I came into work for a few minutes to see what is going on. Glad to see Jim doing
so well!
Tweet
and dont know when it will be up, so I came into work for a few minutes to see what is going on. Glad to see Jim doing
Comment