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Off to Cleveland...


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  • #46
    Re: Off to Cleveland...

    Jim, Best wishes, I'm so glad things are moving along for you. Welcome to Cousin Laura. Please keep us posted. You won't be at the NJ mtg, but we'll all be thinking about you. Linda


    • #47
      Re: Off to Cleveland...

      Dear All,

      Thanks for being so welcoming. I spoke with Jim today and he sounds great! I'm so happy he's getting such good advice and treatment and what appears to be the gold standard in surgeons on the short term horizon.

      I don't know what you're going through exactly, but have an occasionally debilitating chronic disease myself (chronic ulcerative colitis), so I do know the routine of endless MD visits, meds, side effects, family issues, etc.

      Best to you all,
      Cousin Laura


      • #48
        Re: Off to Cleveland...


        Welcome to our site, Jim is lucky to have you for a cousin as we are lucky to have met up with Jim, as the saying goes things happen for a reason

        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


        • #49
          Re: Off to Cleveland...

          I'm so glad that everything got straightened out! You can still keep a sense of humor! Love your post about the lasix I will be thinking and praying for you on June 3rd. take care...lots of hugs!!

          \"It is not length of life, but depth of life.\"

          Ralph Waldo Emerson


          • #50
            Re: Off to Cleveland...

            Jim , Best of luck to you as you go prepare on Monday for your myectomy on the 3rd. I know everything will be OK . Hang in there until we hear from you and how you are doing. Pam
            Dx @ 47 with HOCM & HF:11/00
            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
            Lead failure,replaced 12/06.
            SF lead recall:07,extracted leads and new device 2012
            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
            Genetic mutation 4/09, mother(d), brother, son, gene+
            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


            • #51
              Re: Off to Cleveland...

              Jim, I just back from Cleveland wedsday, after having a septal myectomy. I Know you are having problems, but I can asure you that you are going to the best. I spent 11 days there and had the best care. I still have a long way to go, but I know I can do it. Be strong and have faith. I know thing will work out in the end...

              Patrick Ekardt
              " Real Courage Is Being Scared To Death But Saddling-Up Anyway "


              • #52
                Re: Off to Cleveland...

                Hi Jim,
                I have been following your posts regarding all the problems with CHF you have been having. Just wanted to wish you a speedy and uneventful recovery from surgery. You are in my prayers. Good Luck!
                \"We are not human beings having a spiritual experience. We are spiritual beings having a human experience.\"
                Pierre Teilhard de Chardin


                • #53
                  Re: Off to Cleveland...

                  Jim...glad to hear of your good news. It's 15 days since my myectomy and I do feel better each day. Although you will have good hours and bad hours you will notice the change for the good. Laura, please keep us posted on his progress. I know Cleveland has a computer on the 10th floor that you can use. we will all be waiting to hear your good news...

                  " Real Courage Is Being Scared To Death But Saddling-Up Anyway "


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