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16 year old Steven-Good News- need info


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  • 16 year old Steven-Good News- need info

    Good News,
    the surgery is off for now, as my medicine is increasing and Im getting a defibrilator installed in a couple weeks. Any know about defibrilators, what they do? What is the procedure?

  • #2
    Re: 16 year old Steven-Good News- need info


    please use the search function to find the many, many implantable-cardioverter defibrillator (ICD) posts. Also called AICD, for automatic.

    see also zaplife.org for a site devoted to "zappers."

    take care,



    • #3
      Re: 16 year old Steven-Good News- need info

      I have had a defib for... wow 7 years now. The orignial implant hurt like heck for 2-3 days then it is not bad at all! 2 weeks of no lifting then back to normal!

      I tought my dughter to do cartwheels -after it was in for a year! I do any and everything I want - My ICD is simply my little ER - 24/7!

      Good luck!
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        Re: 16 year old Steven-Good News- need info

        Hey steven-
        lemme just say i know how you feel!! im also 16 and found out i had HCM 3 1/2 months ago and am getting an ICD implant on june 7th. we're in the same boat!!!
        \"The heart swells at the magnificance\"

        1 timothy 4:12: Do not let others look down on you because you are young, but set an example for believers in speech, in life, in love, in faith, and in purity.


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