im very curious to know why it seems that most ablations are done at medical centers OTHER than mayo or cleveland. from the posts ive read it seems that mass. general or the center in south carolina are where most of the ablations are done. Is there anyone out there who was given a choice by mayo or cc and HAD an ablation performed by either of these centers? if so, how were your results and if any staff is reading this from either center, what % is myectomy vs. ablation at these two institutions?
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Re: ablation
Dear Rich
I've never seen any HCM doctors post here, even though I know they pop in from time to time.
If you call or write the clinics directly, though, they may be able to give you an answer on their stats.
My guess (and this is a total guess) as to why it may seem that Mayo & CC are doing fewer ablations is because if you need a myectomy, you are going to make an effort to get to the best place, therefore not go to the closest one. There is the perception that ablations are easier and technically, it is certainly less risky to have a cathater than open heart surgery. However, ablations are also risky and new and not the easy-peasy procedure that many local doctors seem to sell.
The better centers usually have pretty strict protocols on who they will ablate or not. Local hospitals may not be so picky.
To everyone who has had an ablation: please don't flame me. I've had neither myectomy nor ablation-- and it is up to every individual to choose the right treatment for themselves. This is MY PERCEPTION of the situation from having read almost every post on this board for the last two years.
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