If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

My Nervous Dad about to get a Myectomy needs advice


About the Author


underwriterx Find out more about underwriterx
  • Filter
  • Time
  • Show
Clear All
new posts

  • My Nervous Dad about to get a Myectomy needs advice

    Sorry to bother you, but my Dad, who is not web savvy and can only operate email, would like to speak or have an email conversation with anyone that has had a myectomy. He is scheduled to have his operation in May at the Mayo Clinic and he has no experienced friends that he can consult.

    He is 60 years old, has shortness of breath and has some chest discomfort. He is usually lethargic, but I think that is from his sleep apnea. He has also been diagnosed with walking pneumonia on 4/8.

    His email address is [email protected].

    I sincerely appreciate any time you can take to help my Pop.

    If you send a private message with your phone number, please include your time zone. My Dad lives in New Jersey and works in NYC.


  • #2
    Re: My Nervous Dad about to get a Myectomy needs advice


    I'm 2 months post surgery and would be glad to talk to your Dad. Just need a few more details.
    Where does he live (time zones and all that)?
    What are his current symptoms?
    How old is he?
    Where is he having the surgery done?

    Do you need someone to talk to as well? My wife was not quite as prepared for the post surgery as I had hoped. Let me know.


    • #3
      Re: My Nervous Dad about to get a Myectomy needs advice

      David, I edited your post to remove the phone number. If anyone is interested in calling your dad, you can certainly send them a private message or email with it, but I thought it might not be too safe to have that on a public board. I hope you don't mind. I did save the phone number in my own documents in case anyone wants to talk to Raymond.


      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4
        Re: My Nervous Dad about to get a Myectomy needs advice

        Reenie and Felix. I edited the original post to your clarifications.

        Thanks for your help,


        • #5
          Re: My Nervous Dad about to get a Myectomy needs advice

          Dad can not be far from where I live- I am in Morris County NJ. Have him call the office on Tuesday - I will be happy to chat with him and help him get in touch with several people who can assist him in this process.

          Be well,
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)