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My Nervous Dad about to get a Myectomy needs advice

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  • My Nervous Dad about to get a Myectomy needs advice

    Sorry to bother you, but my Dad, who is not web savvy and can only operate email, would like to speak or have an email conversation with anyone that has had a myectomy. He is scheduled to have his operation in May at the Mayo Clinic and he has no experienced friends that he can consult.

    He is 60 years old, has shortness of breath and has some chest discomfort. He is usually lethargic, but I think that is from his sleep apnea. He has also been diagnosed with walking pneumonia on 4/8.

    His email address is [email protected].

    I sincerely appreciate any time you can take to help my Pop.

    If you send a private message with your phone number, please include your time zone. My Dad lives in New Jersey and works in NYC.


    Thanks,
    David

  • #2
    Re: My Nervous Dad about to get a Myectomy needs advice

    David,

    I'm 2 months post surgery and would be glad to talk to your Dad. Just need a few more details.
    Where does he live (time zones and all that)?
    What are his current symptoms?
    How old is he?
    Where is he having the surgery done?

    Do you need someone to talk to as well? My wife was not quite as prepared for the post surgery as I had hoped. Let me know.
    Fx

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    • #3
      Re: My Nervous Dad about to get a Myectomy needs advice

      David, I edited your post to remove the phone number. If anyone is interested in calling your dad, you can certainly send them a private message or email with it, but I thought it might not be too safe to have that on a public board. I hope you don't mind. I did save the phone number in my own documents in case anyone wants to talk to Raymond.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Re: My Nervous Dad about to get a Myectomy needs advice

        Reenie and Felix. I edited the original post to your clarifications.

        Thanks for your help,
        David

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        • #5
          Re: My Nervous Dad about to get a Myectomy needs advice

          David,
          Dad can not be far from where I live- I am in Morris County NJ. Have him call the office on Tuesday - I will be happy to chat with him and help him get in touch with several people who can assist him in this process.

          Be well,
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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