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Lisa - this site is impressive


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Dennis A Find out more about Dennis A
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  • Lisa - this site is impressive

    Lisa - very impressive web site - thanks for the Vision and hard work!

    Unfortunately, I did not know about HCMA before I went to Cleveland Clinic. But it reinforces the fact that without organizations like this there will be a lot of bad information in circulation and a lot of bad medicinal approaches being advocated for this quirky disease. And absolutely world-class care, clinical work and comprehension by the pros at Cleveland. I am so grateful to Dr David Martin & Dr Craig Asher for the early inducements to go to Cleveland in February, and then into the healing hands of Drs Lever and Smedira four weeks ago - the experience was stunning. I've never experienced med care like that. Ten hours after surgery I was walking and feeling better than I had in years. Four weeks after surgery and I feel magnificent. I'm done with syncope, dizzy headedness, chest pain and I can exercise unlike anything I've done in 18 years. Looking forward to helping get this disease further into the light of well-informed medicine - like the CCF's and Mayo's demonstrate.

  • #2
    Re: Lisa - this site is impressive

    Dennis, Thanks for sharing this great news! I'm so happy for you. Linda


    • #3
      Re: Lisa - this site is impressive

      Thanks Dennis. It was great speaking with you a few days ago and I am very happy that you have visited the message and begun to see the community we have built!

      I hope you continue to feel well!

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)