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Back from Mayo (Again)


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Ronnie Find out more about Ronnie
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  • Back from Mayo (Again)

    Hi All-
    I'm hoping to receive some input, info & stories on my experience. 8 Months ago I had a Myectomy @ Mayo. My recovery was "unremarkable", I returned to work after 3 months. I was planning to be the "Poster Child" for Myectomy. At about 4 1/2 months I started feeling pain (worse than B4 my surgery) SOB etc. My local Cardiologist tried various treatments & was in contact w/Dr. Nisimura (Cardiologist @ Mayo) Nothing helped & I made the decision to Retire (I'm 56). I returned to Mayo & last week they did another Cath. Their findings are that My Heart & Lung Pressures are WAY, WAY TOO HIGH. Dr Nishimura, seems very pleased with this diagnosis & tells me it's very treatable w/Meds (what's a few more!) He says they tested in the Cath Lab & found I need to keep my Blood Pressure under 115/70. I've struggled w/high blood pressure my entire life. Oh, Dr N also said he had invited several Dr to observe my Cath & everyone Clapped when he made the diagnosis. I'm thrilled that we ruled out problems that would require more surgery, but am concerned about: How walking around we can get my pressure down, how will I feel, can I resume my favorite activities (golf, boating, traveling) . I need to be more painfree, than I've been the past few months.
    I'm open for all thoughts, suggestions, and whatever

  • #2
    Re: Back from Mayo (Again)

    Hi Ronnie,
    Boating huh? I knew there was something I liked about you. I’m an ex-rag sailor from Long Island Sound. Those were the days . . .

    I think Dr. N. is absolutely right. Once you are on the proper mixture of medications for your condition now, you’ll be back on top of the world again. It is absolutely amazing what can be done with a little bit of this and a little bit of that. Hang in there kiddo, the calvary is mounted and on the way.


    • #3
      Re: Back from Mayo (Again)

      Thanks for the info. I work so hard at being"Positive" & Upbeat, all the time, but some days it's harder to believe I'll ever feel Great again! There's so much I want to do - and for so long I can't do it all! So I'll be a good girl and take my medicine!


      • #4
        Re: Back from Mayo (Again)

        If the team that Mayo Clinic's top-quality, and if Dr. Nishimura has evaluated your care felt it appropriate to change your medication, I would feel very confident that you have a very strong likelihood of feeling better soon.
        The best wishes
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)