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Alcohol ablation

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Bahram Find out more about Bahram
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  • Alcohol ablation

    Hi. I am new here. I just came across this site. I live in Canada. Is there a site for Canadians as well or not?
    Anyhow, I have HCM. I am 41 years old. Have been diagnosed for the past 7 years or so. I was born with a murmur, but nothing serious. Never was fully fit, but never paid too much attention. Played all kinds of sports with my age group. Once at 22, family Dr. thought I have an athletic heart, but further tests showed nothing. Have always felt pretty good, but every time I do an echo, I get told gradient is there. I was put on beta blockers. Did not agree with me. Went on without any medications for a while. Almost symptom free. I have been getting checked out every six months. For past several years, as my gradients has increased, I was given "Rythmodan". Have tolerated it well, without much side effects. However, recently gradient is on the move again. It has been increased to two tablets a day. Every time, that my Dr. talks about Alcohol ablation, and I should consider it. But the next Echo shows the gradient has decreased. So, it is a see-saw. They call it dynamic HCM. I went from 68 to 88, down to 65, up to 86, down to 72, up to 112, and the latest is 90. At 112, I was told, I should seriously have this, but at 90 again, they are not sure. But I get told I must have this sooner or later. I feel pretty good. Do have limited shortness of breath, right at the beginning of uphill walking, but can walk on flat surface, for miles without problem after that.
    Sorry for long message,but any input ?? Thank you!

  • #2
    Re: Alcohol ablation

    Welcome to the message board. We have many Canadian participants and members. If you call the HCMA office, or email the office, Lisa or Kelly will provide you with an info packet. Lisa will be happy to talk with you about your situation if you want to call her. I'm sure others will offer info about their experiences and how they deal with symptoms, etc, but info on the message board is pretty general for everyone. It's a great help just to know you're not alone. Best wishes, Linda

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    • #3
      Re: Alcohol ablation

      Thanks Linda!

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      • #4
        Re: Alcohol ablation

        Welcome to the HCMA - we are here for all with HCM regardless of location! You will find other Canadians as well as those from around the planet!

        I will be in the office on Tuesday if you want to talk.

        Be well,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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