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Ralph I love my family. We have between us 4 great children and they have 9 great children. My passion is flyfishing. I am lucky to live within 5 miles of a great trout river, the Chattahoocee in Georgia. Find out more about Ralph
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  • Alcohol Ablation tomorrow!

    Hi all,

    I am having an alcohol ablation tomorrow at Johns Hopkins in Baltimore. My HCM specialist is Edward Kasper and Dr. Alan Heldman will be done the procedure. He has done a number of the AA's to date with much success so I'm told.

    I am looking forward to my procedure and of course will be glad when it's completed and I'm home again. Dr. Kasper said I'd be in the Hospital for only one or two days. I assume that's if everything goes well.

    Once I'm home I'll send a report to the forum and keep everyone posted. I have found the other posting very helpful in dealing with HOCM and making decisions on treatment.

    Thanks Lisa and all,

    Ralph

  • #2
    Re: Alcohol Ablation tomorrow!

    Ralph,
    Best of luck to you! Please send my regards to Dr. Kasper. You should be home in a day or two.
    I look forward to hearing your home and feeling well!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Re: Alcohol Ablation tomorrow!

      Good luck, Ralph!

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #4
        Re: Alcohol Ablation tomorrow!

        Reenie and Lisa,

        Thank you!

        Ralph

        Comment


        • #5
          Re: Alcohol Ablation tomorrow!

          How did everything go?
          Tammy

          Comment


          • #6
            Re: Alcohol Ablation tomorrow!

            I'm sorry I haven't posted in over 2 months. The alcohol ablation was aborted because the docs found 2 partially blocked arteries and recommend a double by pass and myectomy. To make a long story short I had the double by pass and myectomy at the Cleveland Clinic March 18th. At the time of surgery it was thought I would need a pacemaker. Dr. Smidera placed two pacemaker lead wires to the left side of my heart during surgery. The surgery went well. Three days after surgery I had a small stroke, my left side was effected and I recovered completely within 24 hours. Soon after that they found I had an infection. They cannot put a pacemaker in if you have infection. So, after a few cat scans and xrays that found a pocket of infection between my left rib cage and left lung. April 1st I had Thorastomy which means they cut between two ribs on my side and spread them open. At that time they cleaned out all the gook and placed two chest tubes to drain the area. Shortly after that Dr. Smidera (My great surgeon) informed me he had to remove the leads he had placed during the heart surgery. He romeved them a day or so later. On Aoril 13th my pacemaker was put in and that was my ticket home. My wife and I left the Cleveland Clinic at 11:15 Am April 15th and flew home to Maryland. I am doing well and have begun cardio rehab at my local hospital here in Annapolis.

            Comment


            • #7
              Re: Alcohol Ablation tomorrow!

              Yeah sure,
              But what else is new? - - - Actually that was quite a piece of rough road you had there. Thank G-d you were in such capable hands. I guess you’re due for some smooth sailing now – but don’t go rushing down to that beautiful waterfront just yet. You could do with some more healing first. Enjoy your renewed life, and please keep us posted on your progress – pilgrim.
              Burt

              Comment


              • #8
                Re: Alcohol Ablation tomorrow!

                Ralph , sorry your road to recovering was littered with stones and some bolders. I hope the rest of the way is smooth for you . Take it slow. Pam
                Dx @ 47 with HOCM & HF:11/00
                Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                Lead failure,replaced 12/06.
                SF lead recall:07,extracted leads and new device 2012
                [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                Genetic mutation 4/09, mother(d), brother, son, gene+
                Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                Comment


                • #9
                  Re: Alcohol Ablation tomorrow!

                  Ralph,

                  Sorry to hear that your surgery was more involved than anticipated. I'll agree that Dr. Smederia is a wonderful surgeon, as he did my myectomy in Aug. 2000. You have reached that one-month mark; and, hopefully, everything is healing well. How is re-hab progressing?

                  Keep up the good outlook, as we are all pulling for you! Continue to improve and keep us posted.
                  Dorothy

                  Diagnosed 1996, Myectomy Aug. 2000, 3 Radio-frequency ablations for a-fibs 2003-2005.

                  Comment


                  • #10
                    Re: Alcohol Ablation tomorrow!

                    Ralph

                    Wow, you really had a tough time! Be Proud of Yourself-you got thru it! I bet you Home, never looked as beautiful, as it did when you returned from Cleveland!
                    Stick with your Rehab & Be Well
                    RONNIE

                    Comment


                    • #11
                      Re: Alcohol Ablation tomorrow!

                      Ralph, I hope your feeling better soon, you really went thru a lot.
                      Good Luck & Stay well.
                      Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                      So if you are capable of thought then you are capable of great things
                      Good luck and stay well.
                      Glen

                      Comment


                      • #12
                        Re: Alcohol Ablation tomorrow!

                        Wow, what an ordeal. I guess it puts everything in perspective. I cannot
                        imagine if FElix had gone thru what you went thru, multiple surgeries
                        and real complications.

                        I am glad that you are finally on your way to recovery. Wow!

                        sandy

                        Comment


                        • #13
                          Re: Alcohol Ablation tomorrow!

                          Ralph, This is Linda - using Lisa's computer. I'm so glad to hear things are going well now. I'm sorry you've had such a tough recovery, but it sounds like you've handled it well and had problems recognized and corrected in a timely manner. Thank you for sharing your ups and downs. This is one of the reasons it's so important for people to search and read several stories. things aren't always perfect, even with the best of care. There will be complications at times and the risks need to be considered and weighed carefully. I hope you continue to post progress reports for us, that they continue to remain positive from this point. Will we see you in NJ in June? Hope so - Best wishes, Linda
                          Knowledge is power ... Stay informed!
                          YOU can make a difference - all you have to do is try!

                          Dx age 12 current age 46 and counting!
                          lost: 5 family members to HCM (SCD, Stroke, CHF)
                          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                          Therapy - ICD (implanted 97, 01, 04 and 11, medication
                          Currently not obstructed
                          Complications - unnecessary pacemaker and stroke (unrelated to each other)

                          Comment


                          • #14
                            Re: Alcohol Ablation tomorrow!

                            Ralph,

                            Wow a month at CC for recovery! Ouch! To think I was gripping that I was there a week. Dr. Smirda (?) is GREAT! Glad to thinks are going bettter.

                            Jerry

                            myectomy CC 8/2002

                            Comment


                            • #15
                              Re: Alcohol Ablation tomorrow!

                              Thanks for all your replies and good wishes.

                              I am doing better every day. Today was my 3rd cardio rehab session and I am doing well. I also have been walking on my own. The heart seems fine and I don't have any HOCM symptions at this time. (Knock on wood)
                              If the pain would go away from the thoraectomy I had to clean out the infection, I would be "rockin"

                              I am very lucky, I have the most wonderful wife. She has been right there for me above and beyond the call of duty.

                              I'll keep everyone posted.

                              Oh I don't think I'll make it for the Meeting in NJ, we have lots of family trips we are planning at this time.

                              Ralph

                              Comment

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