If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

The light at the end of the Tunnel

Collapse

About the Author

Collapse

Robbyn Find out more about Robbyn
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • The light at the end of the Tunnel

    I am going in for a myectomy on Wednesday at the Toronto General Hospital. I am a little scared but mostly excited. My mind is dancing and my body just has to catch up. It has been a long two years since I first came to this website. I got rid of the incompetent doctor I had and got a HCM specialist (on the advice of Lisa). There has been alot of ups and downs the past two years, but without the post I have read on here I am not sure I would have survived with my sanity intact. I know it's here somewhere! The light at the end of the tunnel just got very bright.

    Anyway a BIG thanks to Lisa for the HCMA.

  • #2
    Re: The light at the end of the Tunnel

    Robbyn,

    My thoughts and prayers will be with you. I'm sure the knowlege that your surgery will lead to a better quality of life is very exciting.

    I am going in to Johns Hopkins Hospital in Baltimore tomorrow for an "alcohol ablation". It will be done by Dr. Alan Heldman and my HCM Specialist is Edward Kasper who was also recommeded by Lisa. I, like you, am excited about getting "it done" and looking forward to a better quality of life.

    Ralph

    Comment


    • #3
      Re: The light at the end of the Tunnel

      Wow guys you are bringing tears to my eyes! I am thrilled for both of you! It seems like such a long road with a welcomed stop over, with hopefully some relief of symptoms for both of you.

      I will keep both of you in my thoughts tomorrow as you both have your procedures done!

      Please have someone post on the board and let us know that all is well.

      You may feel alone as you enter the hospital...but you are not, we are ALL with you in spirit!

      Be well!!!!
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: The light at the end of the Tunnel

        Good luck, Robbyn!

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

        Comment


        • #5
          Re: The light at the end of the Tunnel

          Best wishes and prayers for Robbyn and Ralph! Linda

          Comment


          • #6
            Re: The light at the end of the Tunnel

            Thanks so much for the words of encouragement. Lisa, no tears you want the whole place crying. Cause I am ready to give it a go. hee hee!

            Comment


            • #7
              Re: The light at the end of the Tunnel

              I must admit there are days when 'it all' gets to me and I get a bit overwhelmed with all the good that has come from the HCMA.

              When I hear of people getting the care they need it is very bitter sweet for me, as my sister did not get the care she needed. I am thrilled each time someone gets to a specialist, has a needed procedure, finds a better understanding of HCM and to have more medical professionals understand HCM... so yes, at times I sit here at my desk in tears of joy for you all.

              Best wishes,
              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment


              • #8
                Re: The light at the end of the Tunnel

                Robbyn, has been awhile and I have wondered how you were doing.
                I'm really glad things are moving for you now.
                By the way, I live closer to you now, in the summer we moved to Scogog Island in Port Perry, just around the corner from the Casino.
                Anyway I wish you good luck and you'll be in my thoughts.
                Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                So if you are capable of thought then you are capable of great things
                Good luck and stay well.
                Glen

                Comment


                • #9
                  Re: The light at the end of the Tunnel

                  Robbyn and Ralph, I will pray for both of you and for the surgeon and staff that God will direct their minds and hands.

                  Comment


                  • #10
                    Re: The light at the end of the Tunnel

                    Robbyn and Ralph , Best wishes for you both tomorrow. You will be in my thoughts and prayers as you go through this and through your recoveries. Take care and give yourselves time to heal. Pam
                    Dx @ 47 with HOCM & HF:11/00
                    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                    Lead failure,replaced 12/06.
                    SF lead recall:07,extracted leads and new device 2012
                    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                    Genetic mutation 4/09, mother(d), brother, son, gene+
                    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                    Comment

                    Today's Birthdays

                    Collapse

                    Working...
                    X