If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Impending Evaluation

Collapse

About the Author

Collapse
THG Find out more about THG
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    Impending Evaluation

    Hi, I'm new to the message board. I've known about my hcm with obstruction for almost 5 yrs. Apparently the meds arn't working and this past week after my latest echo my cardiologist suggested that i go to the Mayo Clinic to see Dr. Nishimura for futher testing and consultation, in fact I have an appointment there in late March.
    However, I live in Ohio approximately 2 Hrs from Cleaveland and Cleaveland Clinic is a PPO provider for me,insurance wise.
    Is there any great difference in testing and or treatment at Mayo over CCF?Can the testing at Mayo be used at CCF?
    I'm 51, My septum is 3.3cm. And I feel pretty good. Some shortness of breath and fatigue. I'm so thrilled to have found this web site, I've already learned so much. Thanks
    Tags: None
  • #2
    Re: Impending Evaluation

    Welcome! I will leave the advice to others who know more than I, but will say you are very lucky to have found this site. A wealth of information and advice is available as well as lots of friendly support. I credit this site with saving my life. Sue

    Comment

    • #3
      Re: Impending Evaluation

      Welcome to the site. Dr. Nishimura is excellent as it the rest of the team at Mayo. The CLeveland team is equally excellent and able to handle your needs. Discuss this with your doctor.

      I am glad you found the HCMA and please let us know if we can assist you in any other way.

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment

      Previous template Next
      Working...
      X