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Wow!!!! Septal Reduction Done!!!! So far, so good.

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MartinKennedy Find out more about MartinKennedy
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  • Wow!!!! Septal Reduction Done!!!! So far, so good.

    On Tuesday, January 6 I underwent a septal reduction using alcohol ablation under the watchful and thorough hands of Dr. Fifer at Mass. General. I think I was #60 to be performed by the A-Team. He has had excellent results. I will post a very complete description of the entire process but basically I entered the prep room at 7:00 a.m. and was in the Intensive Care Unit by about 2:00 p.m. where I spent two nights and then another night on the cardiac step-down unit. Looks like we got it and I do not need a permanent pacemaker; I seem to be ticking away on my own just fine. I went through some fairly typical post-operative issues like loss of pressure and erratic heartbeats but after a little coaxing, things popped right back to my systems. I am home now and dealing with some muscle aches and sleep trouble (I also have a very bad case of sleep apnea...I wonder how many of us suffer from that as well).

    I am overwhelmed with emotion right now but dreaming of warm weather, my Kayak and a pain free summer.

    Marty Kennedy
    Alcohol ablation January, 2004. Stent placed, September, 2003. Now...at age 53...working out, building a cabin, sober and clean. A 2nd chance at life. There is hope, there is a future. Have faith.

  • #2
    Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

    congrats!!!!!

    i hear the sleep thing is a very common post-op thing.

    take care and i'm glad it went so well.

    s

    Comment


    • #3
      Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

      Martin, I'm happy that you're done and doing so well. I hope you're feeling just peachy by the time you can kayak!

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #4
        Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

        Sounds like you are feeling well. What was your gradient pre procedure and post?

        Best wishes,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment


        • #5
          Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

          Hi Martin,

          I am so glad to hear you are doing well after your Ablation. I understand the emotional part of it afterwards. You just feel so much better and look so foward to being "NORMAL" and being able to get back to a regular life.
          I had my Alcohol Septal Ablation done this month, (jan) was a year ago @ MUSC in Charleston S.C.
          I am doing fantastic. The only symptom I have once in a while is the PVC thing. But not too bad.
          That is not to say say that this procedure is always perfect. I will have my 1 yr check up in march and am so excited about it. I wish you much luck and continued good health.

          Connie
          The BEST is yet to come !!

          Comment


          • #6
            Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

            Connie,
            I am glad to hear you are doing well, we have not heard from you in a while.

            Best wishes!
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

              Hi Lisa,

              Yes it has been a while....I visit nearly everyday and read. I am doing very well and have even managed to loose 42 lbs so far. I walk at least 5 to 6 days a week 2 to 3 miles. My blood pressure runs a little low at time and of course my suger is always way low. But I feel real good.
              You know several months ago I was diagnosed with a underactive Thyroid and placed on medication. Is there any medical correlation between HCM and thyroid problems, is this common among HCM patients?
              The first of December I walked in the A.H.A walk for life and had a real good time and met some good people. The AHA dont know a whole lot about HCM I discovered. But any way I walked in memory of my mother. She would have liked that.
              Good to hear from you Lisa, and I see you have been and are extremely busy these days. Remember to take care of "LISA" and her little heart. And thanks for all you do for us!!

              Connie
              The BEST is yet to come !!

              Comment


              • #8
                Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

                Connie, way to go on the weight loss. Now, if only I can get as motivated!

                Reenie
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

                Comment


                • #9
                  Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

                  Thanks Reenie........I think the fear of DYING was a big motivator for me. I went thru somthing as tramatic as the Ablation and it did wonders for my symptoms and I got to thinking, God helped me this far, maybe I need to do somthing to help my poor over worked also. I knew the weight was not good for me.

                  Connie
                  The BEST is yet to come !!

                  Comment


                  • #10
                    Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

                    How did you drop the weight?

                    Lisa
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)

                    Comment


                    • #11
                      Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

                      Hi Lisa,

                      Eat less and move more. I eat healthy good for me foods(less fats,carbs,calories) and pratice portion control and cut out junk foods. And walk 5 to 6 days a week for at least 2 miles.
                      And I read Dr. Phils book, "7 keys to weight loss", 3 times. The emotion and mind set section were the most helpful. I read passages from it daily, and I joined TOPS, they are wonderful.

                      So there it is.........

                      Connie
                      The BEST is yet to come !!

                      Comment


                      • #12
                        Re: Wow!!!! Septal Reduction Done!!!! 2 weeks later

                        Well, two weeks later I am really amazed at how much better I feel. I walked two and a half miles today and took a ride with my wife to NH to look at vacation property...that was something I never thought we woudl be able to do. I was so worried that I might die in the next few years. I have only very mild pressure in my shoulder...no jaw, head, neck, chest or arm and leg pain. I can breathe again. I am hungry and losing weight. I lost almost fifteen pounds since the surgery. I think it was bloating...not good. I am looking forward to a springtime of jogging, kayaking and a little climbing, too. Thanks to all who are out there.
                        Alcohol ablation January, 2004. Stent placed, September, 2003. Now...at age 53...working out, building a cabin, sober and clean. A 2nd chance at life. There is hope, there is a future. Have faith.

                        Comment


                        • #13
                          Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

                          Marty, I very happy for you that things have improved that much. You sound like you are living life again and looking forward to what the future holds. Good luck and best regards, Steve.

                          Comment


                          • #14
                            Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

                            This sure gives me some motivation. I am seeing Dr. Kasper again at Johns Hopkins next week. Back in Sept. I had a cardiac MRI to see if I would benefit from an alchol ablation and my left ventricle was pretty thick and the Dr. thought the procedure may not help. He found out I had a cardiac angiogram in May 2002, so I sent him the CD. I did't hear anything from Dr. Heldman or Kasper. I called in Dec. and last week and I guess I fell through the cracks which didn't make me feel so good. But, I'll see what Dr. Kasper has to say next week.

                            Prayers and good thoughts to all here on the board.

                            Ralph
                            Age 63 diagnosed @ 30, symtoms since early teens.

                            Comment


                            • #15
                              Re: Wow!!!! Septal Reduction Done!!!! So far, so good.

                              Hi all,

                              I am scheduled for my Alcohol Ablation next Monday the 9th at Johns Hopkins in Baltimore. Dr. Alan Heldman will be doing the job and Dr. Edward Kasper is my HOCM Specialist. I am looking forward to the procedure with hope and some fear. Prayers are requested.

                              Ralph

                              Comment

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