Hello everybody. I am 52 years old male diagnosed with HOCM 1.5 years ago. I noticed rapid worsening my condition for this time.
I am considering this thread as my obligation to amazing community on this forum and to future fellow HCMers a like. I used the shared experiences of many of you, which allowed to make right decision for my HOCM condition. So I am 2 weeks now after extended septal myectomy performed by Dr. Schaff at Mayo Clinic. Before the surgery I underwent extensive 3 days evaluation at the same clinic and had consultation with Dr. Ommen. My hospital stay could be as short as 2 days after the op (they started talking about discharge), but sudden defibrillation on 2d day postponed it to the 4th day, after they stabilized everything and made sure I am safe. According to Dr. this happens in 30-40% cases and in principal shouldn't lead to permanent arrhythmia, otherwise I would be implanted pacer. It turns so out that I fall to 95% of lucky ones who benefit after myectomy. On day of my discharge I made a couple trips to the parks with my family and we had two meals in different restraints during which I started noticing that SOB, light-headiness, chest pain are gone. Of course I didn't push myself yet, but I already saw the differences. On day 5 we drove 5 hours back home to Illinois. While I took recommended precaution and didn't drive myself, nevertheless I felt that I was able to do so (I was on tylenol only and didn't take pain killer narcotics). And at home when next day after return I started moderate pace and time treadmill walk it was already higher and longer than before ESM: 3.6 vs 3.2 mil/h and 40 minutes vs 15 mintes of total time. I started driving home on day 10. Planning go to cardio rehab, - but this is probably overkill. So far so good!
I am considering this thread as my obligation to amazing community on this forum and to future fellow HCMers a like. I used the shared experiences of many of you, which allowed to make right decision for my HOCM condition. So I am 2 weeks now after extended septal myectomy performed by Dr. Schaff at Mayo Clinic. Before the surgery I underwent extensive 3 days evaluation at the same clinic and had consultation with Dr. Ommen. My hospital stay could be as short as 2 days after the op (they started talking about discharge), but sudden defibrillation on 2d day postponed it to the 4th day, after they stabilized everything and made sure I am safe. According to Dr. this happens in 30-40% cases and in principal shouldn't lead to permanent arrhythmia, otherwise I would be implanted pacer. It turns so out that I fall to 95% of lucky ones who benefit after myectomy. On day of my discharge I made a couple trips to the parks with my family and we had two meals in different restraints during which I started noticing that SOB, light-headiness, chest pain are gone. Of course I didn't push myself yet, but I already saw the differences. On day 5 we drove 5 hours back home to Illinois. While I took recommended precaution and didn't drive myself, nevertheless I felt that I was able to do so (I was on tylenol only and didn't take pain killer narcotics). And at home when next day after return I started moderate pace and time treadmill walk it was already higher and longer than before ESM: 3.6 vs 3.2 mil/h and 40 minutes vs 15 mintes of total time. I started driving home on day 10. Planning go to cardio rehab, - but this is probably overkill. So far so good!
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