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Heart Remodels Post-Myectomy

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JillC RN for over 40 years, MS degree in Respiratory Nursing, Worked surgical open-heart ICU for 18 years in Chicago.. After years of symptoms finally diagnosed with HOCM in 2006. I retired from nursing 2012 due to HCM and had septal myectomy at Local hospital 2013, Redo myectomy Mayo Clinic 2014. Now doing well. Find out more about JillC
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  • Heart Remodels Post-Myectomy

    I am almost 2 years post-redo myectomy ..... I had my yearly check up with my local cardiologist early as I am traveling next month ..... Plus had a couple symptoms I needed checked out. I passed with flying colors! My echo shows only a 7mm LVOT gradient at rest with no increase with Valsalva. There is no mitral valve regurgitation or abnormal motion. Best yet, now that all the pressures inside my heart are lower,both my right and left atrium have remodeled. They were both still enlarged at 1 year post op and now they both have reduced their size by 50% and are within normal limits.!!! For those of you who followed my battle with fatigue for the past 20 months... I must tell you for the first time since 2011 I feel strong and not fatigued.
    I am a poster child for "Get yourself to a COE for your myectomy if you need one" since I had the pleasure of having mine done twice. There is an editorial on JAMAcardiology.com, Apeil 27, 2016 by Dr. Steve Ommen, head of HCM clinic at Mayo. In it he makes a "Clarion Call" to cardiovascular programs to "Do the right thing" and refrain from doing myectomies when they are only doing a couple a year. I also found out this week that my HMO , Kaiser Colorado has made a clinical policy to send all local members that need a myectomy to a COE..... Based on my case and current research. Yeah!!!
    Onward and Upward!
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

  • #2
    Great news, Jill!
    Myectomy on Feb. 5, 2007.

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    • #3
      Good you are doing great !
      Its so important to live a normal life
      We had a surgical consult with dr guyton at emory today !
      he is the chief of cardiothoracic surgery there
      he said he does ab 2 septal ablations every month
      that sounded pretty good to me
      should we consult someone at mayo ?
      who is a good surgeon there and do you have their stats?

      Comment


      • #4
        Hello "Mom of 3" ..... I also read your other post that mentioned " Septal Myectomy " in this one you mention septal Ablation...... Two different procedures HOWEVER FOR EITHER ONE.... Performing 2 a month is a very low volume and in my opinion and experience does not make for the best outcomes. I do not know Dr Guyton....which doesn't mean someone else might know him well but here is what is generally the best approach to evaluation and treatment for HCM:
        First, get an initial work up or a second opinion at a Center of Excellence. There is an index to COEs by state on the first page of this website Second, if the COE recommends septal reduction as part of the treatment, then head for a COE that has the most experience in septal reduction surgery / myectomy which would be Mayo/Rochester MN, Cleveland Clinic, Tufts Boston.
        Once you have a plan of treatment from a COE they can remain a consultant to your local Cardiologist if you live far away from the COE.
        I hope that answers your questions....Keep us posted!
        After years of symptoms:
        Officially Diagnosed HOCM 2006
        Myectomy 3/11/13 at non-COE
        Extended Myectomy 7/23/14
        At Mayo with Dr. Joseph Dearani

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        • #5
          Thanks for support
          I meant septal myectomy not ablation in my previous post
          I thought 24-25 myectomy a year by one surgeon is a good number.
          what do you think ?
          Do you happen to know Dr Dearani’s number of myectomies performed annually ?

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          • #6
            Mayo Clinic at Rochester Minnesota performs over 200-250 myectomies per year....as far as I know Dr. Dearani and Dr Hartzell Schaff are the 2 surgeons that perform all of them.
            After years of symptoms:
            Officially Diagnosed HOCM 2006
            Myectomy 3/11/13 at non-COE
            Extended Myectomy 7/23/14
            At Mayo with Dr. Joseph Dearani

            Comment


            • #7
              Oh! Thats a good number!
              How about Dr Smedira at Cleveland?
              how do I find out his number ?

              Comment


              • #8
                Not contact number
                but the number of myectomy performed annually!

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                • #9
                  I don't know how to find out Dr. Smedira's number, but I assure you, he performs an enormous number.

                  Gordon
                  Myectomy on Feb. 5, 2007.

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