Well, I still have not had one black-out or grey-out since the surgery. This has been the most amazing change. My entire life I have been seeking a cure for my abnormal epilepsy----------
I do a fair amount of exercise and have a lot of strange chest pains and sensations when doing stretching or yoga. I realize now that this is approximately the way I felt 20 years ago, when the chest pains would come and go with movement. In recent years the chest pains had become a constant feature of every waking moment.
As I healed, I started to feel the scar tissue toughen, and on exercise, I'd feel a slighter version of the burning, stinging sensations that another poster mentioned experiencing after mymectomy. I'm certain she's having a GREAT deal more of this than I, but it is still there.
I've been somewhat confused about the strained tired feeling I get where the obstruction used to be. Since my whole body isn't tired, it is difficult to just stop and rest, but I am trying to be conservative, so I attempt to honor the sensation. Sometimes I think I could just as well push myself through it more------ ???
It has been a big adjustment for me to not have the black-outs. I have nightmares that they come back. They have tortured me all my life, but no one ever believed that I even had them. I don't know how I have survived it.
An elderly friend just said that I lived an easy-going stress free life and people should follow my example!!! I was shocked!!! I explained to her that my slow pace was necessitated by my condition. That my life was like being in a locked room with one big light bulb and a jokester at the switch constantly jerking it off and on at erratic intervals!!! Hardly stress free!!!!
I haven't seen much on these boards about the black-outs. Is the extent of my suffering with them rare? Or is it just something people don't want to admit, even here??
I do a fair amount of exercise and have a lot of strange chest pains and sensations when doing stretching or yoga. I realize now that this is approximately the way I felt 20 years ago, when the chest pains would come and go with movement. In recent years the chest pains had become a constant feature of every waking moment.
As I healed, I started to feel the scar tissue toughen, and on exercise, I'd feel a slighter version of the burning, stinging sensations that another poster mentioned experiencing after mymectomy. I'm certain she's having a GREAT deal more of this than I, but it is still there.
I've been somewhat confused about the strained tired feeling I get where the obstruction used to be. Since my whole body isn't tired, it is difficult to just stop and rest, but I am trying to be conservative, so I attempt to honor the sensation. Sometimes I think I could just as well push myself through it more------ ???
It has been a big adjustment for me to not have the black-outs. I have nightmares that they come back. They have tortured me all my life, but no one ever believed that I even had them. I don't know how I have survived it.
An elderly friend just said that I lived an easy-going stress free life and people should follow my example!!! I was shocked!!! I explained to her that my slow pace was necessitated by my condition. That my life was like being in a locked room with one big light bulb and a jokester at the switch constantly jerking it off and on at erratic intervals!!! Hardly stress free!!!!
I haven't seen much on these boards about the black-outs. Is the extent of my suffering with them rare? Or is it just something people don't want to admit, even here??
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