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It's been a long time since I've been on the board...... to long! Hubby is 40 diagnosed at 38 (4/01). Had two alcohol ablasions - four months apart. Then emergant open heart surgery which included a myectomy. He did the cardiac rehab.
Had continual problems with: high blood pressure, shortness of breath, chest pain, light-headed, edema, and coughing. He went in and out of a-fib for a few months then continual a-fib with episodes of ventricular tachycardia.
At this point he was finally put on amiodarone (9/02). Jan. 03 they discussed radio freguency ablasion. He agrees and it is done on 4/22/03. Three weeks later a-flutter, a-fib has returned.
He is told that he is deconditioned (Via phone tag) by his cardiologist. He is then given an event monitor (6/03) by the electro physiologist and told to come back in a month. That was three weeks ago. He is having edema in lower legs and back to coughing all night long. He doesn't get a call back from his cardiologist for days, when he calls in with a concern.
He is extremely frustrated at this point! He feels that his disease is not important anymore and that the doctors think it's all in his head.
We are in Florida with no way to get to any of the out of state specialists at this time. Could anyone tell us if the Mayo Clinic in Jacksonville has doctors that associate with the Mayo specialists out of state?
I desperately want to help hubby find a better treatment.
Had continual problems with: high blood pressure, shortness of breath, chest pain, light-headed, edema, and coughing. He went in and out of a-fib for a few months then continual a-fib with episodes of ventricular tachycardia.
At this point he was finally put on amiodarone (9/02). Jan. 03 they discussed radio freguency ablasion. He agrees and it is done on 4/22/03. Three weeks later a-flutter, a-fib has returned.
He is told that he is deconditioned (Via phone tag) by his cardiologist. He is then given an event monitor (6/03) by the electro physiologist and told to come back in a month. That was three weeks ago. He is having edema in lower legs and back to coughing all night long. He doesn't get a call back from his cardiologist for days, when he calls in with a concern.
He is extremely frustrated at this point! He feels that his disease is not important anymore and that the doctors think it's all in his head.
We are in Florida with no way to get to any of the out of state specialists at this time. Could anyone tell us if the Mayo Clinic in Jacksonville has doctors that associate with the Mayo specialists out of state?
I desperately want to help hubby find a better treatment.
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