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Myectomy in Boston FINALLY!

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  • Myectomy in Boston FINALLY!

    Ok, after quite a great deal of changes in plans and moving it to Mayo, they are finally ready to perform the first myectomy in Boston. Actually 2 of them. This is great news for folks in the New England area and south because it will give everyone another choice of locations to have a myectomy done.

    The Boston Clinic has been able to perform all the other components of HCM management, but until now they had not had a surgeon who can perform the myectomy on the scale and level of expertise that is done at Mayo and Cleveland, hence, they declined to do them until now. On July 22, Dr. Dearani from the Mayo will be flying to Boston to train the top cardio-thoracic surgeon at NEMC/Tufts the fine tuned procedure with the newest scalple technology. Admittedly, I am nervous to be the first or second (two will be done that day and we don't know who goes first) but someone had to be first at Mayo and at Cleveland too. I feel like we are in great hands with the surgeon here who is ranked in the top 100 surgeons in the country, along with Dr. Dearani. All eyes will be on them including a host of other surgeons, a group of anesthesiologists, and every cardiologist there. I think with this amount of attention I feel pretty safe.

    Wish us luck and in about 3 weeks it will be history. I will be sure to let everyone know how it goes. This is a great thing to expand the abilities of surgeons and broaden the knowledge of this disease to other places in the country. Now for a west coast clinic...

    Now its off to Cape Cod to rest and relax for the weekend...Doug
    NEMC's (Boston) First Myectomy 7-22-2003

  • #2
    Re: Myectomy in Boston FINALLY!

    Doug, Best wishes, enjoy Cape Cod! Linda

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    • #3
      Re: Myectomy in Boston FINALLY!

      I am happy that a date has been set... and it is "show time!" Enjoy your rest, get your mind in the right place to help your body get through the procedure and you will be fine.
      You will have a great deal of attention and very gifted hands all around!

      Stay well!
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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