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Myectomy in Boston

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Liannedr Find out more about Liannedr
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  • Myectomy in Boston

    I am looking to find out if there is anyone who has had a myectomy done at Tufts-New England Medical Center? My husband is in the process of waiting for a date & we have run into a few issues with the surgeon - I would like to hear other peoples experiences.

  • #2
    Re: Myectomy in Boston

    There are not many here who have gone to NEMC for a myectomy (yet) from what I understand they do have a good surgeon who has some training under one of the "big guys" but I do not have much info YET - I will get it to you ASAP.

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: Myectomy in Boston

      Hi,

      I would like to also know about that. It is very possible I will choose the myectomy also and could benefit from that info as well.

      Thanks,
      Doug
      NEMC's (Boston) First Myectomy 7-22-2003

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      • #4
        Hello
        i am also considering the idea of getting my husbands Myectomy done at boston
        we do have an appt with dr Barry Maron ,he is the one who established Hocm COE at mayo and has now moved to tufts
        any opinion ?
        also whats your opinion ab dr guyton at emory ?
        he says he does ab 2 septal myectomies every month
        that sounded like an impressive number to me!

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        • #5
          I don't know anything about Dr. Guyton, but I do know that the best results from myectomies are at the high-volume centers: Tufts, Cleveland, and Mayo. If you have the ability to travel for your myectomy, you really should consider it.

          Gordon
          Myectomy on Feb. 5, 2007.

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