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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
hey everyone i am back from cleveland clinic my surgery is scheduled for june 3rd. i am suppose to go up beforehand to meet another doctor who will be involved with my case. they said something about repairing one of my valves. also can anyone tell me where they make the incision for this surgery. i am kinda lost on all of this. hope everyone is doing well.
amanda
First of all, I know that surgery is overwhelming but I can tell you that you are in wonderful hands all the way around at CCF. The surgeon, doctors, nurses and staff are terrific!
I had my myectomy at CCF last August. As for the incision, if you are having a myectomy it should start somewhere in the upper part of your breast bone (mine starts about 3" down from the notch at the base of your neck) and is made vertically down. The length of the incision does vary, mine is about 7" long or so. It is considered 'open heart surgery' in terms of opening the chest to reach the heart. If they need to do valve work it's done at the same time as the myectomy. If you want more details on all of this feel free to post, search back in previous posts or PM me. I'll be happy to elaborate on whatever you might like to know.
By chance do you happen to have the book that is by Dr. Barry J. Maron, M.D. and Lisa Salberg on Hypertrophic Cardiomyopathy? If you do, there is a page (page 39) that is devoted to diagraming what takes place in the heart during the myectomy. This may be something you want to take a look at if you want those type of details prior to meeting with the surgeon.
All the best,
Lynn
Lynn Stewart
HOCM 4/2002
Cleveland Myectomy Crew 8/2002
There are many people on the board who have had myectomy or valve repair - check older posts for details you can use the search feature above.
Many people can give you input here - most of all you should know your in great hands!
Be well,
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
I too am a graduate of CCF. Lynn covered all of the details on the scar. Mine is also about 7" long right down the middle of the chest. As with Lynn, I would be happy to answer any additional questions you might have. There is a lot of info in the archives. Good Luck
Bob
Cleveland Myectomy Crew
Member since November 2002
I think I am on the 75/25% side leaning toward Myectomy here too. I want to know...really know, what was the 7 days following the surgury like. No punches pulled, and I know time fades away unpleasant experiences. However, I am getting ready to make the biggest decision of my entire life and I want to go into this as informed as humanly possible.
Does anyone here have any first hand knowledge of Dr. Kimmelsteel (sp) and his work? (Offline is fine.)
I am being given the choice of either procedure as I am a candidate for either.
Thank you to everyone who has responded and given me your personal experiences. Your time and effort to do so is very much appreciated.
Does anyone here have any first hand knowledge of Dr. Kimmelsteel (sp) and his work? (Offline is fine.)
I am being given the choice of either procedure as I am a candidate for either.
Doug
What center is he with?
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
You ar 100% correct the name slipped my mind for a minute! I have seen him talk at AHA or was it ACC on ablations - he has a good approach, I do not know how many he has done but he really seems to have a full understanding of the procedure and HCM in general.
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
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