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One week after myectomy


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  • One week after myectomy

    I had a myectomy at the mayo clinic last Thursday and am doing great. The Mayo Clinic is an AMAZING place. Very organized, very skilled I have no complaints. The nurses were extremely skilled and sympathetic. I never had to ask for my pain medication. They were there before I had to ask. My husband even commented on the fact that he seen one of the surgery nurses at a restaraunt the day after my surgery. She was off duty, but took the time to ask him how I was doing.
    My gradient before the surgery was 120 and now is 0. I had some valve leakage that is now fixed. They have turned off the pacemaker part of my defibulator. It is there for back up only. Before it was pacing 80%. The pain for me has been minimal. I have cut my pain medication down to one every 7-8 hours. At the hospital it was 2 every 5-6 hours. I walk my son to the bus stop every morning and meet him every night. Slowly, but we get there.

    I just wanted to tell every one THANK YOU very much for referring me to the Mayo Clinic. I never would have looked into this option without you. You guys are great.

  • #2
    Re: One week after myectomy

    Dear Kay,

    GREAT!!!!!!!!!!! So glad you are doing well. They are amazing up there, that is for sure.

    If you get a second, check out Nicole's recent post --she needs a myectomy and is a little worried.

    keep us posted and keep up the wonderful recovery.



    • #3
      Re: One week after myectomy

      I am so happy for you and do hope that your recovery continues to be so positive!
      Thank you for sharing your expeience with us all - I am sure that it will be helpful to others in the future.
      Thanks to all our firends at the Mayo Clinic for taking such great care of you!

      Be well,
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        Re: One week after myectomy

        Kay, I'm so happy you're doing so well. I can't believe you're already walking your son to the bus stop!! Wow, way to go! Remember to take care of yourself and keep us posted.


        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.


        • #5
          Re: One week after myectomy


          Isn't the difference, before and after, truly amazing? Its like you become a whole new person! I am glad you are doing so well. Although I did not go to Mayo, I know it is a great place.

          Cleveland Myectomy Crew
          Member since November 2002

          \"Chance favors the prepared mind!\"


          • #6
            Re: One week after myectomy


            So glad to hear that your experience was such a positive one!! It sounds like things are going very well.

            Take care of yourself - don't do too much!



            • #7
              Re: One week after myectomy

              Great to hear you are doing so well. I also had a myectomy at Mayo about six years ago and feel great still! It is amazing how much better it can make you feel. Hope all continues to go well for you. Maria


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