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check out the FAQ by clicking the
link above. You may have to register
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Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
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Welcome back from the dark side. We are all glad to hear your signal loud and clear after 24 hours of static. Remember every 4 or 6 hours gets easier for reaching, scratching and picking up the TV remote. Soon you will be typing fast again and that's the only thing worrying us . But since you have been out, President Obama has announced a major initiative for Net Neutrality , so you may not have to compete with NetFlix.
You are definitely on schedule. My cardiologist said the LBBB is a sign of a good myectomy....usually stays for life, I did not have LBBB after my first myectomy but developed one after my second myectomy. It really causes no problem. Your heart just uses an alternate electrical pathway to get it's work done.
After years of symptoms:
Officially Diagnosed HOCM 2006
Myectomy 3/11/13 at non-COE
Extended Myectomy 7/23/14
At Mayo with Dr. Joseph Dearani
Welcome back from the dark side. We are all glad to hear your signal loud and clear after 24 hours of static. Remember every 4 or 6 hours gets easier for reaching, scratching and picking up the TV remote. Soon you will be typing fast again and that's the only thing worrying us . But since you have been out, President Obama has announced a major initiative for Net Neutrality , so you may not have to compete with NetFlix.
Seriously, so glad you are doing well.
LMAO....I am not complaining....I was concerned to watch the cardiologist scratch his head and say...hmmm....you do have a heart.
So I think they are going to throw me out of here tomorrow..guess they had enough :P
That's a good sign! They were going to send me out post op day #4 but were threatening to send me out with oxygen....so my nurse suggested to them I stay one more night and prove I didn't need it. So I walked and breathed deep all day long and made it through the night by the skin of my teeth with 89-90% sats during deep sleep.....Of course I got back to the thin air here in Denver and wished I had a tank with me!
Do you feel ready to go?? I'm single and I gave my daughter a grocery shopping list for easy to fix meal stuff so my fridge and freezer had lots of choices when I got home.....Chicken soup was the best.
After years of symptoms:
Officially Diagnosed HOCM 2006
Myectomy 3/11/13 at non-COE
Extended Myectomy 7/23/14
At Mayo with Dr. Joseph Dearani
I realize that this may come as a shock to some....but so far, recovery has followed the same script that I had anticipated...not arguing but, not complaining either....and good results aren't so bad......no major new symptoms......a bit of LBBB, but no afib or anything similar. Incisional paid has beened treated with 4mg of dilauded every 2 hours oral....and no bites in the butt. Going home tomorrow...and the weather is pretty cold even for Chicago.....need to have the motorcycle conversation with Dr. McCarthy tomorrow.....we shall see how that goes..
However, I continue to be amazed and awed that things have been pretty uneventful. GFR is up to 36 which is the highest it has been in close to a year. So if it isn't acting up I am not complaining. Started doing laps in ernest and stairs....they are saying 2-3 weeks to start full blown cardiac rehab at Rehab Institute of Chicago...if they are happy then so am I.
The one thing I have stating unequivocally is that there there is nothing at CCF or Mayo Rochester that I couldn't have gotten at Northwestern. We can go back and forth on any aspect and if someone were looking for a team to handle HCM Dr. McCarthy is as good of a cardiothoracic surgeon as you could find anywhere and Drs. Bonow and Choudhury are as capable of a pair of cardiologists as you will find anywhere. Anyone that is in need of very high quality medical professionals either in their own field or for supporting teams won't be disappointed by NMH....and the physical facilities are second to none. And besides that Chicago is a World Class City to spend some time in.
Will keep you in prayer. It won't be quite what you planned for.
Sent from my iPad using Tapatalk
Actually up to this point it has proven to be EXACTLY what I planned for, and there clearly is a go ahead to get started back to work next week...so I think I am more than happy to follow the advice of my doctors.
Having your experience at Northwestern documented here on the forum is the best testament you can give for those who come here to gather information about where to go for HCM care and Surgery. I'm glad you are having a stellar recovery. Keep us posted!
After years of symptoms:
Officially Diagnosed HOCM 2006
Myectomy 3/11/13 at non-COE
Extended Myectomy 7/23/14
At Mayo with Dr. Joseph Dearani
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. But since you have been out, President Obama has announced a major initiative for Net Neutrality , so you may not have to compete with NetFlix. 
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