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ebstolz Find out more about ebstolz
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  • Membership inquiry

    Hi All! I hope everyone is doing well. I relocated in January from NC to NM ... which is why I disappeared from the board! It is BEAUTIFUL here ... I love it!

    Lisa ... When I got here I wrote via email and informed you that I never received the last newsletter. When did it go out? It wasn't sent to my NC address and I have mail forwarding set up! Oh well. Could you please send it to me? If you need my address again here in NM please send me a personal email to [email protected] and I would be glad to send it to you!

    Update on Dad -- he had his 3 mos septal ablation follow-up at MUSC 2 weeks ago and he is doing FABULOUS! No more shortness of breath, he is in a monitored cardiac exercise program and is doing terrific, he can walk without taking breaks where as before walking to the mailbox caused him severe pain and he couldn't breathe. He just feels wonderful and has been offered a new chance at life. His ICD is ok ... while it annoys him at times, he has finally accepted it as being a part of his body! In his case the ablation saved his life and restored his quality of life! It's been a blessing to have my daddy back! I have never seen him so happy and active in 29 years! Amen!

    God Bless!

  • #2
    That is wonderful, I am glad he is feeling so well!
    I too have moved the HCMA is in a new office I may have misplaced your new address, please re-email it to me and I will send it out to you!

    I hope all is well in NM and I KNOW the weather is better there then HERE!

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      So that's what happened to Erica! Good to hear from you again, and esp the good news about Dad. Is he in NM also? That ICD can be a big annoyance just because it is such a great reminder of things out of your control. But then you also have to remember that it is there to take care of those out-of-control situations. Welcome back. Linda


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