If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Mayo Clinic vs. Cleveland Clinic

Collapse

About the Author

Collapse

Matt21 Find out more about Matt21
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Mayo Clinic vs. Cleveland Clinic

    I am in the beginning stages of planning for a Myectomy and was was wondering what different peoples opinions were of the two hospitals. Would you more highly recommend one over the other? Theres no doubt that both are great hospitals, but since I would have to travel no matter where I went, I would like to be seen in the best one available.

    I have been able to find statistics from Cleveland Clinic on the successfulness of their procedures, but finding information from Mayo clinic has proven to be much more difficult.

    Any information that can be provided will very helpful and much appreciated.

  • #2
    Re: Mayo Clinic vs. Cleveland Clinic

    Hi Matt. I'm sorry but I don't think that Mayo and Cleveland can be compared the way you are thinking. They both have excellent reputations and excellent specialists and surgeons. I think it would be best to see which site is a better fit for you in other ways, such as insurance coverage, accessibility, ease of transportation, personality, etc. If you haven't already spoken to the HCMA office about your upcoming procedure, please do so. They might be able to give you more specific information to help suit your needs.
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: Mayo Clinic vs. Cleveland Clinic

      I think Reenie has made some good points. Both have excellent programs !! If I had to do it again, I'd have no qualms about going to either facility.
      Linda
      Onward and Upward !

      Diagnosed 4/07 HCM with fixed & dynamic obstruction
      Myectomy with resected cordonae tendonae 4/08 CCF
      ICD 10/08

      Comment


      • #4
        Re: Mayo Clinic vs. Cleveland Clinic

        I agree. I had my myectomy at the Cleveland Clinic, but there's no question about it: you'd be in great hands at either place.

        Gordon
        Myectomy on Feb. 5, 2007.

        Comment


        • #5
          Re: Mayo Clinic vs. Cleveland Clinic

          I'm partial to Mayo Clinic since I'm near it. Although I was rather turned off at the outpatient testing. Getting all of those tests done felt like being in an assembly line. The consequence of their outpatient services handling more patients than any other clinic.

          A more recent study ranking hospitals ranked Cleveland Clinic as number 1 and Mayo Clinic as number 2 for heart treatment. It appears that Mayo makes more unnecessary medical mistakes and has a slightly lower survival rate than Cleveland Clinic. Mayo only beats Cleveland Clinic in nursing coverage, which they are both above average. There is a lot of information in the study about patient satisfaction you can browse.
          http://health.usnews.com/best-hospit...-heart-surgery

          Comment


          • #6
            Re: Mayo Clinic vs. Cleveland Clinic

            For what it's worth:

            In my opinion, it makes absolutely no difference. I have been attending the Mayo Clinic for my hypertrophic cardiomyopathy for 11 years now. I had defibrillator surgery at Mayo several times, and I had a myectomy at Mayo, as well. When I lived in Massachusetts, I was a patient at Tufts University Medical Center and the care I received there was comparably similar. I would venture to say that Cleveland Clinic would be the same. Regardless of where you end up, as long as it's a hypertrophic cardiomyopathy specialty center, (particularly the big 3 of Mayo, Cleveland, and Tufts), you'll be A-okay. Good luck.

            Comment


            • #7
              Re: Mayo Clinic vs. Cleveland Clinic

              I was also deciding between Cleveland and Mayo when I had my surgery 7 years ago. I looked at the travel costs, costs of hotel, ease of transportation to the clinic, the personality of the place, the nursing, etc. to decide, and I ultimately chose Mayo for a few reasons: It was slightly closer to me; the cost of hotels and other expenses was less being in a small town than in the bigger city of Cleveland; it is a friendlier place full of 'Minnesota nice' where everyone is there to support the clinic; and lastly, I had an opportunity to meet my surgeon, Dr. Dearani and my cardiologist, Dr. Ommen, at the HCMA annual meeting, and really liked them. I was very happy with my choice, but I am sure that I would have also done fine at Cleveland. It is whatever makes you feel the most comfortable.
              Daughter of Father with HCM
              Diagnosed with HCM 1999.
              Full term pregnancy - Son born 11/01
              ICD implanted 2/03; generator replaced 2/2005 and 2/2012
              Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

              Comment


              • #8
                Re: Mayo Clinic vs. Cleveland Clinic

                Hi Matt,
                Both Mayo and Cleveland have excellent reputations. From the map it appears Cleveland is closest to SC if that matters at all. I had a myectomy at Tufts in Boston last year and they were wonderful. I can't give you any statistics for success but the surgeon, Dr. Rastegar (he does all the myectomies), is extremely experienced; he's been doing something like 50 a year for over 5 years. I'm guessing that Cleveland or MN are easier to navigate (strictly geographically that is) than Boston, but if you feel like taking a short trip to New England...
                Cheers,
                Dave

                Comment


                • #9
                  Re: Mayo Clinic vs. Cleveland Clinic

                  Hi Matt -
                  I had my surgery at Mayo just over 2 years ago, so of course I will be partial to them. I do disagree with Kevin about the testing procedures - while it is very much like being on an assembly line, the testing went so smoothly and everyone that I encountered treated me like a person, not a patient or a number. I think it's a Minnesota quality. Even though I had a schedule written out, everyone was very kind to me.

                  I will tell you the one bad thing about Mayo - to get there flying, if you want to fly in close to the hospital, you have to fly into Rochester, which isn't horrible, but you cannot get there on a direct flight. So, at some point you will have to change planes. Not that it's impossible, and you can definitely request a wheelchair in the airport, but it does make for a longer trip. You can probably get better direct flights to Cleveland.

                  But I loved my surgeon, cardiologist, nurses and all the support staff at Mayo.
                  Whichever you choose, you will be in good hands.

                  Laura
                  Diagnosed with HOCM 11/03
                  A-Fib 4/09
                  Ramipril 2.5mg
                  Baby Aspirin

                  Myectomy 1/3/11 - Mayo Clinic - Dr. Schaff
                  Maze Procedure 1/3/11 - Mayo Clinic - Dr. Schaff


                  Mom to two crazy dogs

                  Comment


                  • #10
                    Re: Mayo Clinic vs. Cleveland Clinic

                    I was also looking at both. I still think the stats & numbers are too close to judge - especially when you factor in all the other attributes others spoke of. My deciding factor was meeting the doctors & surgeons at the HCMA conference, listening and watching how they interact with patients (and not just their own). The big Ah Ha moment was having a beer with my eventual HCM doctor and meeting my surgeon. They were a cohesive team that truly put patients first. The care I had at Mayo was the finest I've ever rec'd (and I've been in 17 hospitals in 3 countries). The folks in Rochester (from janitors to doctors) are the kindest, nicest I've ever had the pleasure to have met. I'll admit, being a ways away from Minn/St. Paul is not the greastest, but I traveled from So Cal so whats another hour and a half? I've been back for check-ups and will continue to do so - its worth it.
                    Marc
                    Diagnosed @ 48
                    Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
                    Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
                    AICD - Valentines Day '08, Spark Plug replaced 11/14
                    After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
                    Quietly going insane . . .

                    Comment


                    • #11
                      Re: Mayo Clinic vs. Cleveland Clinic

                      Thank you all for the fast responses.

                      I currently have an appointment with Dr. Lever at Cleveland Clinic in early April. After talking on the phone with Lisa, I learned that it was possible for me to only make one long trip and do everything, from the test to the surgery, at once.

                      I called Cleveland on friday to look into the details of this and when they would possibly be able to work me in. They told me to call back monday because they were busy that day. I would like to have some peoples thoughts on this before I just schedule everything at once (which is the way I'm leaning towards right now). As I'm a college student, mid-May/early June would be optimal for me so I would have plenty of time to recover and begin feeling well enough to take care of myself by August.

                      So my question now is, what has everyone else done? Have you gone to see the doctor and do all the test in one trip and then come back at a later date for the actual surgery. Or have you done one long trip.

                      Keep in mind I will have to travel and would like to keep the cost of that down as much as possible, but if people feel like it is strongly recommended to make two trips, that is something I am willing to do.

                      Comment


                      • #12
                        Re: Mayo Clinic vs. Cleveland Clinic

                        If I knew I needed a myectomy or ASA before I went, personally, I would do it all in one swoop. Unfortunately that was not the case for me. If you do everything together, it will definitely save you some $$. Also doing it with your optinal timeframes in mind, is the best way to go. Myectomies are rarely (if at all) an emergency surgery, so waiting should not be a problem. You will make the decision that is right for you.
                        LindaSo
                        Onward and Upward !

                        Diagnosed 4/07 HCM with fixed & dynamic obstruction
                        Myectomy with resected cordonae tendonae 4/08 CCF
                        ICD 10/08

                        Comment


                        • #13
                          Re: Mayo Clinic vs. Cleveland Clinic

                          I had my myectomy at the Cleveland Clinic in June (2004) and was perfectly fit to return to classes in the Fall. Set the whole summer aside for your surgery, recovery, cardiac rehab, and so on. By August you should be able to take care of yourself just fine. If the college you attend is away from home, it might be a good idea to find a cardiologist there you can check in with from time to time to monitor your progress.
                          "Some days you're the dog... some days you're the hydrant."

                          Comment


                          • #14
                            Re: Mayo Clinic vs. Cleveland Clinic

                            I knew I was a strong surgical candidate based on all my local doctors input. When I called Mayo, I booked my doctor consult and my surgery date. They said if surgery is not needed, its easier to cancel it. It made it easier to schedule a flight in & out. I think your smart for scheduling when its optimal for you. I was able to drive at about 6 weeks. Most need between 8 & 11 weeks to fully recover, so summer break is perfect for you.
                            Marc
                            Diagnosed @ 48
                            Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
                            Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
                            AICD - Valentines Day '08, Spark Plug replaced 11/14
                            After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
                            Quietly going insane . . .

                            Comment


                            • #15
                              Re: Mayo Clinic vs. Cleveland Clinic

                              Ditto to what Marc said. I had my test results sent from Los Angeles ahead of time, and we were pretty sure I would need to have surgery ahead of time. I did have the added bonus of having already known my cardiologist and surgeon ahead of time, and we discussed my case before I went. I also needed to carefully schedule because I had a young child who I had to make arrangements for, so I booked the whole thing in one trip over the summer vacation while I sent my son to stay with his aunt and uncle. My son was away for two weeks, and I was in Minnesota for about 11 days or so. I flew home on day 8 after surgery, and was able to go back to work about 8 weeks after surgery. I drove after 6...maybe even 4. You would be fine to go back to school in August or September if you have surgery in June.
                              Daughter of Father with HCM
                              Diagnosed with HCM 1999.
                              Full term pregnancy - Son born 11/01
                              ICD implanted 2/03; generator replaced 2/2005 and 2/2012
                              Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

                              Comment

                              Today's Birthdays

                              Collapse

                              Working...
                              X