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My husband is Rockstar!

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dblomom Husband diagnosed w/ HCM May, 2001 at age 26 ICD implanted July, 2011 "Double" Myectomy, January, 2013, performed by Dr Schaff @ Mayo Clinic, Rochester, MN 2 kids, 12 & 9 currently cleared of HCM Find out more about dblomom
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  • My husband is Rockstar!

    Just an hour ago, my husband was discharged from St Marys Hospital in Rochester MN after having heart surgery on Friday. As I sit in a dimly lit hotel room, watching him sleep peacefully for his first "uninterrupted" post-surgery nap, I am still amazed what all has happened. To say the staff here is top notch is an understatement. I know his surgeon, Dr Schaff, and his team (or Service as they call it) see these things all the time. But to me, it is not an less amazing what these professionals are capable of. I will be forever grateful to all of them here for "fixing" my husband.
    I was told some fascinating information post-op on my husband (Jon). Not only did he have a
    septal myectomy, but they also performed an apical myectomy. Apparently this is more rare? It was so "impressive" that they took photos in the OR (for future teaching) and shared them with us (they're sending them to me in the mail) . Although Jon had a little trouble looking at them, I saw them and they explained in detail what it all meant I guess they normally remove muscle that is equivalent to a male's thumb. It appeared that the amount removed on Jon was more like 3 thumbs. No wonder he felt so bad!!!
    With all of this said, I will not lie....when we were discussing this medical care 4 months ago, we both thought, "do we REALLY need to go all the way to Minnesota for this?". I now know that the answer is, without a doubt, YES! I cannot imagine if he had been at a facility that was not a COE, being seen by what I am sure is any capable cardiac surgeon...but I cringe at the thought of that "capable" surgeon getting in there and not being the best in the world at this procedure, not feeling confident enough to remove as much muscle as Dr Schaff did, not having the experience with the complicated "double myectomy".
    There are lots of very good facilities all over that can provide great cardiac care. But if you're considering your options, in the big picture, the trip is VERY worth it. You just never know how things are going to work out and I am so grateful that we had only the best.
    Amy
    Husband diagnosed w/ HCM May, 2001 at age 26,
    he is now obstructed. ICD implanted July, 2011,
    myectomy scheduled for Jan, 2013 w/ Dr. Schaff
    Mayo Clinic, Rochester, MN
    2 kids, 11 & 8 currently cleared of HCM (genetic testing
    to be done at Mayo visit)

  • #2
    Re: My husband is Rockstar!

    Amy, it's great to hear that he's out of stir and doing well! It's amazing what they can do at a center with a lot of experience.

    Gordon
    Myectomy on Feb. 5, 2007.

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    • #3
      Re: My husband is Rockstar!

      I too got photos of my surgery (I requested). Mayo has like 9 still photographers and a few Video folks.
      I needed proof for my kids - "see, I do have a heart".

      Glad he's mending and getting stronger daily (it is amazing!) Have your Rockstar walk, Breath into his thingy, and rest. Repeat often. He'll be back to his new & improved form in no time.
      Marc
      Diagnosed @ 48
      Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
      Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
      AICD - Valentines Day '08, Spark Plug replaced 11/14
      After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
      Quietly going insane . . .

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      • #4
        Re: My husband is Rockstar!

        The photos really threw me for a loop! The PA asked if we knew they had taken them and when she showed them to us, I was more in awe of Jon than ever. I normally don't handle those things well, I'm a real wimp when it comes to that kind of stuff, but I was just amazed. I think everyone should have the photos!!! Maybe even sell it in a package, kind of like when you have a new baby (Package A: 2 5x7, 4 wallets) Thanks for letting me brag about him.
        Amy
        Husband diagnosed w/ HCM May, 2001 at age 26,
        he is now obstructed. ICD implanted July, 2011,
        myectomy scheduled for Jan, 2013 w/ Dr. Schaff
        Mayo Clinic, Rochester, MN
        2 kids, 11 & 8 currently cleared of HCM (genetic testing
        to be done at Mayo visit)

        Comment


        • #5
          Re: My husband is Rockstar!

          I am so happy to hear that everything went well.
          Congratulations to both of you.

          It's amazing how soon you actually start to feel better. I finally got it when I flew home exactly one week after surgery and they were taking their time with the wheelchair at my final destination...when I walked up the ramp and could breathe when I got to the top....WOW - did take the wheelchair to baggage, but that was mostly due to incision pain.

          Here's to Jon getting stronger everyday and getting his life back. Dr. Schaff is amazing.

          Laura
          Diagnosed with HOCM 11/03
          A-Fib 4/09
          Ramipril 2.5mg
          Baby Aspirin

          Myectomy 1/3/11 - Mayo Clinic - Dr. Schaff
          Maze Procedure 1/3/11 - Mayo Clinic - Dr. Schaff


          Mom to two crazy dogs

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          • #6
            Re: My husband is Rockstar!

            Originally posted by dblomom View Post
            The photos really threw me for a loop! The PA asked if we knew they had taken them and when she showed them to us, I was more in awe of Jon than ever. I normally don't handle those things well, I'm a real wimp when it comes to that kind of stuff, but I was just amazed. I think everyone should have the photos!!! Maybe even sell it in a package, kind of like when you have a new baby (Package A: 2 5x7, 4 wallets) Thanks for letting me brag about him.
            Amy

            You have every reason to brag - I wish I had gotten photos....wonder if they keep them?
            Diagnosed with HOCM 11/03
            A-Fib 4/09
            Ramipril 2.5mg
            Baby Aspirin

            Myectomy 1/3/11 - Mayo Clinic - Dr. Schaff
            Maze Procedure 1/3/11 - Mayo Clinic - Dr. Schaff


            Mom to two crazy dogs

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